tag:blogger.com,1999:blog-32617232116892704522024-03-06T08:24:48.088-08:00Isaiah Quinntopical steroid withdrawal Unknownnoreply@blogger.comBlogger15125tag:blogger.com,1999:blog-3261723211689270452.post-87036663466528111942023-05-20T20:38:00.007-07:002024-02-29T15:40:20.250-08:00PTSD..<div dir="ltr" style="text-align: left;" trbidi="on">
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<h3 style="clear: both; text-align: center;"><span><span style="font-family: courier;"><i>I wrote this post in 2017, and only now, 6 years later, in 2023, am I finally able to click "post" because I am not in this place anymore. <br /></i></span></span><span><span style="font-family: courier;"><i>My daughter is not in this place anymore. <br /></i></span></span><span><span style="font-family: courier;"><i>I am so thankful we are no longer struggling with PTSD.<br /></i></span></span><span><span style="font-family: courier;"><i>I am able to post this in victory. <br /></i></span></span><span><span style="font-family: courier;"><i>We made it through the hell of TSW, and the hell of PTSD after.</i></span></span></h3><h3 style="clear: both; text-align: center;"><span><span style="font-family: courier;"><i><br /></i></span></span><span><span style="font-family: courier;"><i>Don't ever give up..<br /></i></span></span><span><span style="font-family: courier;"><i> <br /></i></span></span><span><span style="font-family: courier;"><i>I am posting this for those struggling mentally. </i></span></span></h3><h3 style="clear: both; text-align: center;"><span><span style="font-family: courier;"><i>You are not alone.<br /></i></span></span></h3><h4 style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjv8VJi_yXxUjAuhLyL6GBVa_bxEMLZJ0m_EIQj6uInkvP3_nfjwPdc-Ryu6XQNnaMu-P-N8O2sSmLUuS-V6xguRrhxhCWJzuikJ3Aj8ruDKJFZ_zGJjdCPLS7vJdGPi7KueOdqn6-KVujcc-dZQF8ynESIT80-mL0MmLrEcnW7B41Cm8ZNPXnMwDqAgg/s1723/1658260_10152067818874983_547172467_o.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1213" data-original-width="1723" height="281" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjv8VJi_yXxUjAuhLyL6GBVa_bxEMLZJ0m_EIQj6uInkvP3_nfjwPdc-Ryu6XQNnaMu-P-N8O2sSmLUuS-V6xguRrhxhCWJzuikJ3Aj8ruDKJFZ_zGJjdCPLS7vJdGPi7KueOdqn6-KVujcc-dZQF8ynESIT80-mL0MmLrEcnW7B41Cm8ZNPXnMwDqAgg/w400-h281/1658260_10152067818874983_547172467_o.jpg" width="400" /></a></h4><div style="text-align: center;"><span><span style="font-family: courier;">~~~~<br /><br /><span color="rgba(0, 0, 0, 0.54)" face="Roboto, RobotoDraft, Helvetica, Arial, sans-serif" style="background-color: white; font-size: medium; text-align: start;"><b>December 3rd, 2017 1:49 PM</b></span></span></span></div><div style="text-align: center;"><div style="text-align: start;"><span style="font-family: courier; font-size: medium;"><br /></span></div><span><span style="font-family: courier; font-size: medium;">Been putting this post off for many months..</span></span></div>
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<span><span style="font-family: courier; font-size: medium;">..finally feel it is time, since healing is taking place..</span></span></div>
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<div style="text-align: center;"><span><span><span style="font-family: courier; font-size: medium;">..as I force myself to type this! </span></span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><span>..ha!</span><span>😶</span></span></div>
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<span style="font-family: courier; font-size: medium;"><span><span>We have some wonderful things to share </span></span><span>and some things that in my flesh, </span><span>I would like to stay hidden..</span><span>😬</span><span> </span></span></div>
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<span><span style="font-family: courier; font-size: medium;">Ya'll know me.. </span></span></div>
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<span style="font-family: courier; font-size: medium;"><span><span>I was brutally raw with emotion and feeling, </span></span><span><span>when I brought our family out from behind the TSW curtain,</span></span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">starting this blog back in 2013..</span></span></div>
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<span style="font-family: courier; font-size: medium;"><span><span>I felt that I wanted to share in full that truth, of </span></span><span>what was our reality..</span></span></div>
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<span><span style="font-family: courier; font-size: medium;">..to be able to tell our story in all honesty..</span></span></div>
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<span><span style="font-family: courier; font-size: medium;">..and to be able to relate to those suffering like us..</span></span></div>
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<span><span style="font-family: courier; font-size: medium;">I shed many tears through the typing..</span></span></div>
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<span><span style="font-family: courier; font-size: medium;">..some that were more like </span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><span>uncontrollable sobs - </span><span><span>where I had to physically get up and walk away from the computer </span></span><span>to take care of Isaiah,</span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">and regroup mentally..</span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><span>..it was all consuming, </span><span>and a struggle like I had never known..</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div><div style="text-align: center;"><div class="separator" style="clear: both; text-align: center;"><span style="font-family: courier; font-size: medium;"><span><span><span>It was an admittance of utter hopelessness in many ways, </span></span><span>in my human nature.. </span></span><span>but loving and leaning on my Lord, </span><span><span>ev</span></span><span>en when He seemed silent..</span></span></div><div class="separator" style="clear: both; text-align: center;"><div class="separator" style="clear: both; text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div></div></div>
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<div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><i>And that is not an easy place</i>..</span></span></div>
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<span><span style="font-family: courier; font-size: medium;">drought...</span></span></div>
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<span><span style="font-family: courier; font-size: medium;">barrenness..</span></span></div>
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<span><span style="font-family: courier; font-size: medium;">suffering..</span></span></div>
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<span><span style="font-family: courier; font-size: medium;">pain...</span></span></div>
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<span><span style="font-family: courier; font-size: medium;">..grief</span></span></div>
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<span><span style="font-family: courier; font-size: medium;">..worry</span></span></div>
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<span><span style="font-family: courier; font-size: medium;">..chaos </span></span></div>
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<div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">Knowing The Healer..</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div>
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<span><span style="font-family: courier; font-size: medium;">..but waiting on the manifestation of that healing..</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div>
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjL_EvmIbC1uCFG6HZwysQEnIfj3duu6FZcqES4Erwa7muUmAcATVPmE8GoeInaPfcosfmA9GPqYhjvsiMNktzW9Z7LdQck6SMn194EUMzu4DLi6UbN1w9QBkXczbti-VXEPZyuvtc4QcfjFoO7SiV82b1intLR_eiHGzUEhhTAWXoboAUpTqKITV1cKQ/s3264/39.jpg" style="margin-left: 1em; margin-right: 1em;"><span style="font-family: courier; font-size: medium;"><img border="0" data-original-height="1840" data-original-width="3264" height="225" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjL_EvmIbC1uCFG6HZwysQEnIfj3duu6FZcqES4Erwa7muUmAcATVPmE8GoeInaPfcosfmA9GPqYhjvsiMNktzW9Z7LdQck6SMn194EUMzu4DLi6UbN1w9QBkXczbti-VXEPZyuvtc4QcfjFoO7SiV82b1intLR_eiHGzUEhhTAWXoboAUpTqKITV1cKQ/w400-h225/39.jpg" width="400" /></span></a></div></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div>
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<span style="font-family: courier; font-size: medium;"><span><span>Standing on the Psalms, and relating to David, </span></span><span><span>as he cried out to </span></span><span>the same God, </span><span>in similar anguish of soul..</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div>
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<span><span style="font-family: courier; font-size: medium;">That which I knew in my spirit</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">as Truth.. </span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">..but having to walk out that Truth.</span></span></div>
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<span style="font-family: courier; font-size: medium;"><span><span>Having to turn away the negative from people, </span></span><span>that may have meant well, </span></span></div>
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<span><span style="font-family: courier; font-size: medium;">but their words and opinions cut like knives.</span></span></div>
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<span style="font-family: courier; font-size: medium;"><span><span>The lack of others' understanding, and being </span></span><span>too tired and weary to even begin to try </span><span>to make them see or understand, made it become easier just to shut the door on life.. </span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">on them.. and on their opinions..</span></span></div>
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<span style="font-family: courier; font-size: medium;"><span><span>All the while, in our home, we were trying everything we could </span></span><span>to help our son hold on for dear life, </span></span></div>
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<span><span style="font-family: courier; font-size: medium;">and keep what little bit of hope we had from totally unraveling.. </span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">While too, keeping our precious young daughter from losing herself in the pain and grief that was so thick and stifling here, </span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">day in and day out..</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtmY5F_uFHswI0TSeh2rsbkJIcJp5hFnEECuy4nGlanqluCR6Jp3y_AmpdC7EOJu4Vk-ZYv7WFeGLyTSAcW044WJEUBryVy6dyt8Jfp2lpfU3zH7RcF1oRzo42kPyT_hYkDXsKjF90VXzEr12WyPRd8WXBcbxhddNTucheAEpq2pO8y8Bpnu_TwGyZkw/s4352/26.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="3264" data-original-width="4352" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtmY5F_uFHswI0TSeh2rsbkJIcJp5hFnEECuy4nGlanqluCR6Jp3y_AmpdC7EOJu4Vk-ZYv7WFeGLyTSAcW044WJEUBryVy6dyt8Jfp2lpfU3zH7RcF1oRzo42kPyT_hYkDXsKjF90VXzEr12WyPRd8WXBcbxhddNTucheAEpq2pO8y8Bpnu_TwGyZkw/w400-h300/26.JPG" width="400" /></a></div><br /><span>All the peace she had ever known came to a screeching halt, and life for us all took a drastic turn.</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">She kept the sweetest demeanor when it came to him, and always wanted to help in any way she could, from baths, to wraps, to feeding and supplements.<br />She would sing to him and play him songs..</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiK2VxJ2A0X0oekcSgQXQ3slO82hC5CYAQzf9LQS5aUDWHaNoUWt-iVuC04AMOeMGIlCDLf1r0xsANUGGPuoIib4uUhm8Gyd7HJ3ndzkzT6zP5rKOGvBciJGXo3M771cTZJeS-VzSakJlORUxCsVPHOlJFMjtbb30AQov9YG8IQWg_q2zWO3S-xUKbNJw/s4352/27.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="3264" data-original-width="4352" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiK2VxJ2A0X0oekcSgQXQ3slO82hC5CYAQzf9LQS5aUDWHaNoUWt-iVuC04AMOeMGIlCDLf1r0xsANUGGPuoIib4uUhm8Gyd7HJ3ndzkzT6zP5rKOGvBciJGXo3M771cTZJeS-VzSakJlORUxCsVPHOlJFMjtbb30AQov9YG8IQWg_q2zWO3S-xUKbNJw/w400-h300/27.JPG" width="400" /></a></div></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: large;">~~~</span></div>
<div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">There are truly not enough grievous adjectives for what we lived out..</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br />Most people just did not understand.<br /></span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">I may not have either, lest I lived it out. </span></span></div>
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<span><span style="font-family: courier; font-size: medium;">Who knew skin could be so deep??</span></span></div>
<div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">Who knew a cream, that could be picked up without prescription from the corner store, could cause so much damage?? </span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">It almost cost a life. </span></span></div>
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<span style="font-family: courier; font-size: medium;"><span><span>Who could ever imagine being in a health crisis, </span></span><span><span>where most of those in the medical field that should help, </span></span><span>ended up doing more harm than good??</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div><div style="text-align: center;"><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhuD89gRpm7OkbVu_5ps7DUrYkolAK5tIsWbLqN1GsXIFIR9-7ekS59eSENtJfktXRiIi4xYlxkKy2B2ESx0Wotzbm9dzw8eFr3MU0wQ5oU4w0dgLFuoDYMeEkiZz6Q-JOPBg6H2OVi-5OFXBJpBwGSETsBmIh6anep_y-PBOtgzf8MoMs2--EX4TxwcA/s4352/77.JPG" style="margin-left: 1em; margin-right: 1em;"><span style="font-family: courier; font-size: medium;"><img border="0" data-original-height="3264" data-original-width="4352" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhuD89gRpm7OkbVu_5ps7DUrYkolAK5tIsWbLqN1GsXIFIR9-7ekS59eSENtJfktXRiIi4xYlxkKy2B2ESx0Wotzbm9dzw8eFr3MU0wQ5oU4w0dgLFuoDYMeEkiZz6Q-JOPBg6H2OVi-5OFXBJpBwGSETsBmIh6anep_y-PBOtgzf8MoMs2--EX4TxwcA/w400-h300/77.JPG" width="400" /></span></a></div><span style="font-family: courier; font-size: medium;"><br /></span></div>
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<span><span style="font-family: courier; font-size: medium;">Having to trust our instincts.. </span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">...being led by the Spirit..</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"> </span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">..following God, whom we cannot see..</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"> </span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">..feeling that we are taking each moment as a step of faith into utter darkness..</span></div>
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<span><span style="font-family: courier; font-size: medium;">..each breath being hard and heavy to even breathe..</span></span></div>
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<span><span style="font-family: courier; font-size: medium;">..feeling numb and surreal day in and day out, where it seemed like we would never wake up from the nightmare.. </span></span></div>
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<span><span style="font-family: courier; font-size: medium;">..leaning fully on God,</span></span></div>
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<span><span style="font-family: courier; font-size: medium;">when the answers were not laid out clearly..</span></span></div>
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<span><span style="font-family: courier; font-size: medium;">..trusting and hoping, from a pit of despair..</span></span></div>
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<span style="font-family: courier; font-size: medium;"><span><span>..digging deep for courage, when being so shaky and unsure</span></span><span>.. </span></span></div>
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<span><span style="font-family: courier; font-size: medium;">..trying to cast down doubt and discouragement, when we were so enveloped in it..</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">..most days, I was not even sure if I was truly able to..</span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: large;">~~~</span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">My daughter and I were here 24/7, while my husband left daily for work.</span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"> </span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><span><span>I believe that is why the two of us were more affected by the crippling anxiety, </span></span><span>fear of separation, and PTSD.</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div><div style="text-align: center;"><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhXZM4fvSYKK8z1iqkYzATRBIEiF1ceC7dEdHQuOOXWrS327yGNCCQiOslWGXIEF3e2Kmgz5bS01fEn0EazCOaxNn1Ll33bjyWYF-tIbjCT0fVaIrd135USyFW4BEpJanMh7_PfhQb_-D04W--r5Weolc9U6GA5xPcg9AQLfJQRLuZ2ESqNBhvCt0b8Bg/s3264/20.jpg" style="margin-left: 1em; margin-right: 1em;"><span style="font-family: courier; font-size: medium;"><img border="0" data-original-height="1840" data-original-width="3264" height="225" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhXZM4fvSYKK8z1iqkYzATRBIEiF1ceC7dEdHQuOOXWrS327yGNCCQiOslWGXIEF3e2Kmgz5bS01fEn0EazCOaxNn1Ll33bjyWYF-tIbjCT0fVaIrd135USyFW4BEpJanMh7_PfhQb_-D04W--r5Weolc9U6GA5xPcg9AQLfJQRLuZ2ESqNBhvCt0b8Bg/w400-h225/20.jpg" width="400" /></span></a></div></div><div style="text-align: center;"><span style="font-family: courier;"><span style="font-size: medium;">~~~</span></span></div>
<div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><span><span><span>Isaiah turned a fantastic corner in October of 2014 and </span></span><span>began for the first time since we started this journey, </span></span><span>to have </span><span>beautiful skin, full body..</span></span></div>
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<span><span style="font-family: courier; font-size: medium;">By December we began to venture out and the PTSD that had tried to grip me for months, really tried to consume me.. </span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">It was wild, because here we were:</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">Getting back to life! </span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">I should be happy..excited!</span></span></div>
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<span><span><span style="font-family: courier; font-size: medium;">But the reality was I had to force myself out the door, </span></span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><i>every single </i><i>time I left</i>..</span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">This went on for months and months..</span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div>
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<span><span style="font-family: courier; font-size: medium;">..and even little things like </span></span></div>
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<span style="font-family: courier; font-size: medium;"><span><span>putting on makeup and straightening my hair </span></span><span>seemed foreign and strange,</span></span></div>
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<span><span style="font-family: courier; font-size: medium;">as I began to do it again for the first time in over 2 and a half years..<br /><br />Getting dressed again in clothes other than balm and ooze stained </span></span></div>
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<span><span style="font-family: courier; font-size: medium;">t-shirts and jogging pants.. </span></span></div>
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<span style="font-family: courier; font-size: medium;"><span><span>Going places other than the hospital and doctor's office, </span></span>and trying to forget the dread that used to well up inside every time we loaded up to go..</span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br />Back then, the car doors would shut, and I would spin into deeper and deeper fear in my mind, each time we loaded up his little, broken body.. </span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br />..my feet, mind and shoulders felt like lead, and it was always hard for me to breathe.</span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: large;">~~~</span></div>
<div style="text-align: center;"><span style="font-family: courier; font-size: medium;">Putting a focus and care on myself again, even just to do those little things like make-up and hair.. </span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">when I had not even really looked in the mirror for months. </span></span></div>
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<span><span style="font-family: courier; font-size: medium;">It may seem silly, but it was so hard for me..</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">I had been so consumed with survival for Isaiah </span></div>
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<span><span style="font-family: courier; font-size: medium;"> that I almost fully lost myself in it..</span></span></div>
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<span><span style="font-family: courier; font-size: medium;">The joy that I once had, I felt like it was gone..</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div>
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<span style="font-family: courier; font-size: medium;"><span><span>..I knew deep down it had to still be there, </span></span><span>it was just foreign,</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">like that blush and eyeliner..</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div>
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<span><span style="font-family: courier; font-size: medium;">I wanted so desperately to be out of the misery in my mind, </span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">and I wanted the anxiety to stop trying to choke me..<br /><br />It was hard even being around family.</span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">Where I was once so extroverted and constantly on the move with my daughter.. </span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">home school field trips, always at church, and out with friends..<br /><br />I didn't even know how to do that anymore, and I tried to hide what I was feeling inside.</span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">I had a total melt down having to escape a restaurant around the time of my birthday, where we met with family for the first time since I had Isaiah.</span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">I had to force myself to go, and almost didn't. </span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">Almost couldn't.</span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"> </span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">I didn't realize that there was a cake for me, and the waiter was asked secretly by a relative to come and have the others sing to me.</span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"> </span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">It sounds absolutely crazy now, even typing this out, but it took everything in me not to hyperventilate and pass out. </span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">By the time I made it to the parking lot, I was bawling, and could not even see to walk to the car. I was panic stricken in my mind and it felt like all 4 walls were closing in on me.</span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">All the attention had been on me, and my mind could not take it. </span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">Everything felt surreal and seemed so much louder than it physically was.</span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">There are just no words to describe how the anxiety made my mind feel in that moment, and so many other moments in those months following, like it.</span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"> <br />Never - <i>in my life </i>- have I <i>ever</i> felt that way over something so small and trivial. </span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">It didn't make sense, and I <i>knew</i> it didn't make sense, but in my mind I felt like I would collapse from the weight of it.</span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"> </span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">I didn't even understand anxiety until this season of my life and I hated the PTSD, and how it made me feel. </span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">How simple tasks were now a struggle, and anything outside of my new comfort zone made me feel trapped, to the point of no escape. </span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">Even though, in the natural, I was not bound! It was all mental! </span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">Anything could trigger it, but</span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">Isaiah's baby clothes were always the hardest to deal with. </span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br />All those baby onesies. </span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiBpOI1ypAabpq0WofWESfvdIt7xiJ6jvp5FjCI4tRQxmzg8INvqxBRuuxBDY50VdrVYISqUt8VeNiXJulzKkdhBeD8xklE9YT8yVCCilDUhPN_q3ImoyNvR2Y2jS1VkGBOG2eKcxS9bp08R8ljlj47VrFZBZI5pbZG9J6h-LSlBUNiaq-x2h177VLZFw/s959/onesies.jpg" style="margin-left: 1em; margin-right: 1em;"><span style="font-family: courier; font-size: medium;"><img border="0" data-original-height="959" data-original-width="953" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiBpOI1ypAabpq0WofWESfvdIt7xiJ6jvp5FjCI4tRQxmzg8INvqxBRuuxBDY50VdrVYISqUt8VeNiXJulzKkdhBeD8xklE9YT8yVCCilDUhPN_q3ImoyNvR2Y2jS1VkGBOG2eKcxS9bp08R8ljlj47VrFZBZI5pbZG9J6h-LSlBUNiaq-x2h177VLZFw/w398-h400/onesies.jpg" width="398" /></span></a></div><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">They were all stretched and stained, but every time I tried to get rid of them, I would panic and cry. </span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">I just couldn't do it. </span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br />It hit every season when I needed to purchase new clothes for Isaiah, (because he was growing, finally!) </span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">..no more failure-to-thrive..</span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><span> </span><span>I would see them and the waves of emotions would come crashing down.</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"> </span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">Last year, I was finally able to bag them all up and move them to the hall linen closet.</span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"> </span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">That is where they will always stay. </span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">There were things I would come across from the hospital, or even helping others through our Etsy shop. </span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">Some days, I would just sit and sob, looking at those precious babies that looked just like our Isaiah, </span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">filling our inbox, and think, </span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><i>"Lord, you have given me this healing ministry.. as we continue to walk out our family's healing, please help me continue to minister.. </i></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><i>Give me strength to do what you have called me to do..."</i></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><i><br /></i></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">Seeing the words from those sweet people, telling me how our story has given them hope and strength, helped breathe another breath of hope and strength into me. </span></div><div style="text-align: center;"><span style="font-family: courier; font-size: large;">~~~</span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">I realized one day, that in less than 2 weeks, my licence was going to be expired - for two years!</span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><div>I had not driven in that long.. </div><div><br /></div><div><span><span>I was in the backseat with Isaiah for all trips, and I even almost </span></span></div><div><span><span>became fearful to drive. </span></span></div><div><span><span><br /></span></span></div><div><span><span>Because my driver's license had been expired so long, I was 2 weeks away from having to retake the drivers test! Praise the Lord He prompted me to look at it, </span></span>for whatever reason.. </div><div><span><span><br /></span></span></div><div><span><span>..who knows if I could have even taken the test, when it was so hard to even step foot outside </span></span>the door of our home most days.</div></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">I felt like a shell of my former self. </span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">I didn't even recognize myself anymore.. </span></div>
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<span><span style="font-family: courier; font-size: medium;">I was tired of the knots in my stomach and throat.. my heart always racing and teeth clenched.. </span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">I was tired of being frozen in fear and frozen in time..</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">Life was happening around me, and I felt like I was spinning out of control mentally..</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><span><span>I was watching the stress, that had made itself at home in our home, also try to cripple our </span></span>daughter...</span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">It really spiraled when she had a panic attack at a church bible school, and couldn't remember our phone number because she was so upset. </span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;">She had made herself physically sick by the time they figured it out and called us. This was the first of many major episodes for her.</span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">She was struggling with extreme separation anxiety, every time she would leave for violin lessons, or outings with family, and it got to the point where she would not go anywhere</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">without us. </span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span><span><span style="font-family: courier; font-size: medium;">This season had forced her to grow up in so many ways, and the experience was too much for her precious little mind to bear most days.</span></span></span></div><div style="text-align: center;"><span><span><span style="font-family: courier; font-size: medium;"><br /></span></span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">~~~</span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><span><span>At home with Isaiah as he healed, she was happy and calm, </span></span>so most days, we just stayed here. </span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhwrjYfXhab0uSjVKcs8kZP0WvK2NaqE7-zXRwBuS8rFdF6iFpYZM5_dfMtNEQfI9HeKNCMbb2dVs9b_5GuXK-ZfbGoz4Qze7Tvic_a9qRQuIO0hT99cUon6MqiikAerz-g_yLyNy49CSys3mImHaf56w1Emy8j1bMAc_n_Es3XSZIn2YO7TsLA7w4EFQ/s4352/76.JPG" style="margin-left: 1em; margin-right: 1em;"><span style="font-family: courier; font-size: medium;"><img border="0" data-original-height="3264" data-original-width="4352" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhwrjYfXhab0uSjVKcs8kZP0WvK2NaqE7-zXRwBuS8rFdF6iFpYZM5_dfMtNEQfI9HeKNCMbb2dVs9b_5GuXK-ZfbGoz4Qze7Tvic_a9qRQuIO0hT99cUon6MqiikAerz-g_yLyNy49CSys3mImHaf56w1Emy8j1bMAc_n_Es3XSZIn2YO7TsLA7w4EFQ/w400-h300/76.JPG" width="400" /></span></a></div><span style="font-family: courier; font-size: medium;"><br /></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">The days turned into months, and it got harder for the two of us to even want to leave. </span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: large;">~~~</span></div>
<div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><span> Blogging his </span><a href="http://isaiahquinn.blogspot.com/2015_04_01_archive.html">TSW milestones and healing</a><span> helped me tremendously,</span></span></div>
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<span><span style="font-family: courier; font-size: medium;">as well as including our </span></span></div>
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<span><span style="font-family: courier; font-size: medium;">sweet TSW <a href="http://isaiahquinn.blogspot.com/2015_07_01_archive.html">Super Heroes</a> & <a href="http://isaiahquinn.blogspot.com/2014/12/my-amazing-update-post-1-in-blog-photo.html">Pals</a>.. </span></span></div>
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<span><span style="font-family: courier; font-size: medium;">I never understood post-traumatic stress until it came knocking on my door throughout TSW, and the years that shortly followed..<br /><br /></span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><span><span>I never knew anxiety or being triggered</span></span><span> by so many things.. </span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">..sometimes daily.<br /><br />I never knew how hard it would be just to venture outside of these four walls, and face life and the people, who had read in black and white, the depths of the suffering of my soul. </span></span></div>
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<span style="font-family: courier; font-size: medium;"><span><span>Mentally, I had been in that fight-or-flight response </span></span><span>for months on end</span></span></div>
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<span><span style="font-family: courier; font-size: medium;">and it had tried to burn a rut of familiar in my mind.. </span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div>
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<span><span style="font-family: courier; font-size: medium;">I had cried more in two years than I had in my whole life, and the enemy of my soul wanted to keep me in that place..<br /><br />Some days I almost let him win.. <br /><br />BUT GOD.</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">..and looking into the fearful eyes of my daughter made me push through my own fears, </span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">because I made up my mind that no matter what, I was not going to let this consume her, like it was trying to consume me.<br /><br />I hid the panic attacks for many months because I did not want it to affect her, anymore than TSW already had.. </span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">I would lock the door to the bathroom and hyperventilate and pray. I would lay hands on my own head, and command the fear to flee.</span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: large;">~~~</span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">When she would cry about leaving home, and I would hold her close, I would dig scriptures to read over her, that she could hide in her heart, </span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">and even me, in my own..</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /><div style="text-align: center;"><span><span>The main one being:<br /> </span></span></div><div style="text-align: center;"><i>2 Timothy 1:7 For God has not given us a spirit of fear, but of power, love and a sound mind. </i></div><div style="text-align: center;"><br /></div><div style="text-align: center;">Power, love and a sound mind.. </div><div style="text-align: center;"><br /></div><div style="text-align: center;">A sound mind? </div><div style="text-align: center;"><br /></div><div style="text-align: center;">Could I ever even get back to that place?</div><div style="text-align: center;"><br /></div><div style="text-align: center;">What did that even mean for me, now? </div><div style="text-align: center;"><br /></div><div style="text-align: center;"><div>I had heard and quoted that scripture for years, but God was going to reveal the true meaning for our family, that we could dig into, and hold on to, with our souls.</div><div><br /></div></div><div style="text-align: center;"><div>Peace in mind and heart? </div><div><br /></div><div>Steadfast and set?</div><div><br /></div><div>I had to..</div><div><br /></div><div>for me..</div><div><br /></div><div>but especially for her.. </div><div>and for Isaiah..</div><div>~~~</div></div><div style="text-align: center;">I searched "sound mind" online and found this:</div><div style="text-align: center;"><p class="MsoNormal"><i>What Does It Mean To Have a Sound Mind? <o:p></o:p></i></p>
<p class="MsoNormal"><i>It suggests something that is delivered, rescued,
revived, salvaged, and protected, and is now safe and secure. One expositor
suggests that the word 'sozo' (Stong's Greek 4982) could actually depict a person who was on the verge
of death but then was revived and resuscitated, because new life was breathed into
him.</i><o:p></o:p></p></div><div style="text-align: center;">Revived..</div><div style="text-align: center;"><br /></div><div style="text-align: center;">Salvaged..</div><div style="text-align: center;"><br /></div><div style="text-align: center;">Protected..</div><div style="text-align: center;"><br /></div><div style="text-align: center;">Safe and secure.. </div><div style="text-align: center;"><br /></div><div style="text-align: center;">Having new life breathed into us?</div><div style="text-align: center;"><br /></div><div style="text-align: center;"><i>Yes, please and thank you.. 👏</i></div><div style="text-align: center;"><br /></div><div style="text-align: center;">We had just fought for our son, </div><div style="text-align: center;">who, thank God, would not even remember the hellish pain.. </div><div style="text-align: center;"><br /></div><div style="text-align: center;">and now, it was time to fight for the mental health of both me and my daughter.</div></span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: large;">~~~</span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><span><span>We didn't seek therapy, although looking back, having a Christian counselor may have helped</span></span><span>. </span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div><div style="text-align: center;"><span><span><span style="font-family: courier; font-size: medium;">We did fight through with scripture.</span></span></span></div><div style="text-align: center;"><span><span><span style="font-family: courier; font-size: medium;"><br /></span></span></span></div><div style="text-align: center;"><span><span><span style="font-family: courier; font-size: medium;">And when I say fight, I mean battle, and it was fierce, and sometimes minute by minute. </span></span></span></div><div style="text-align: center;"><span><span><span style="font-family: courier; font-size: medium;"><br /></span></span></span></div><div style="text-align: center;"><span><span><span style="font-family: courier; font-size: medium;">Having just come through TSW, there was no way I was going to let anything come against our minds and win. </span></span></span></div><div style="text-align: center;"><span><span><span style="font-family: courier; font-size: medium;"><br /></span></span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: medium;"><span><span> We used the Sword and S</span></span>hield of the Word to quench the fiery darts from the enemy in our minds.</span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><br /></span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">Speaking the same Life into our thoughts, feelings and emotions, that we did into Isaiah's skin.</span></span></div><div style="text-align: center;"><span style="font-family: courier; font-size: large;">~~~~ </span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"> I am thankful for the Only True God who carries us, when we can no longer even stagger. <br /><br />I am thankful for the yoke that is easy, when our burdens are too heavy to bear. <br /><br />I am thankful for the grace and mercy of God, that stands us up, washes our souls, and breathes on us to keep pushing forward.. </span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;">not letting up, or letting us give up!</span></span></div><div style="text-align: center;"><span><span style="font-family: courier; font-size: medium;"><span><br /></span><div><span><span>I was relieved for our family, and for our son especially..</span></span></div><div><span><br /></span></div><div><span><span>To see his smile, finally, made our hearts melt..</span></span></div><div><span><span><br /></span></span></div><div><span><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhbgrsLN4R2WEryVnLuRkPNKHQsZ5ee3grVzbfLesZA37FH9y36Q7mdGtpQkX4ngEzksRgPsyEymIVtpK2KDnEkFkLI0nLZot4XSmgax8ETaZUaWlmMjF1-bNtWt1XtypLD1Xx3NBYo_TWPCl7AsdiPSJDWIAAt3Ly3cV0kvmd-0_1GaMhhrG0iK03C3Q/s4352/80.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4352" data-original-width="3264" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhbgrsLN4R2WEryVnLuRkPNKHQsZ5ee3grVzbfLesZA37FH9y36Q7mdGtpQkX4ngEzksRgPsyEymIVtpK2KDnEkFkLI0nLZot4XSmgax8ETaZUaWlmMjF1-bNtWt1XtypLD1Xx3NBYo_TWPCl7AsdiPSJDWIAAt3Ly3cV0kvmd-0_1GaMhhrG0iK03C3Q/w300-h400/80.JPG" width="300" /></a></div><span><br /></span></span></div><div><span><span><span>He would dance with our daughter, and play with toys.. they laughed and giggled, </span></span><span>and it was precious. </span></span></div><div><span><span>She would hug and kiss him.. we all could - without the worry of damaging his skin.</span></span></div><div><span><span><br /></span></span></div><div><span><span><span>She showed him her favorite toys and cartoons, playing and dancing, and would make the sweetest videos with him. </span></span><span>They would smile together in selfies, and life was better and better for him each day.</span></span></div><div><span><span><br /></span></span></div><div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiwwhU0H79jrAMV8o1X3t5283KXKtm0ZzpRgiSNsJS1CQ4HljCOykJ9RaLtIADldh6dUBAcNMfcgjUeLt5w0hxM4TsmIYw-V-fpkSdvK_K1mQ-NVkIFMY5YEY1aMHW0ExA9jP_jvuVB_REumCPpTcOLvQg430qEfa-c5Kp_fdS1pItB5getiCrzQlc1dA/s4352/100.JPG" style="margin-left: 1em; margin-right: 1em;"><span><img border="0" data-original-height="3264" data-original-width="4352" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiwwhU0H79jrAMV8o1X3t5283KXKtm0ZzpRgiSNsJS1CQ4HljCOykJ9RaLtIADldh6dUBAcNMfcgjUeLt5w0hxM4TsmIYw-V-fpkSdvK_K1mQ-NVkIFMY5YEY1aMHW0ExA9jP_jvuVB_REumCPpTcOLvQg430qEfa-c5Kp_fdS1pItB5getiCrzQlc1dA/w400-h300/100.JPG" width="400" /></span></a></div><span><span><br /></span></span></div><div><span><span>She was - and is! - the best sister to him. </span></span></div><div><span><span><br /></span></span></div><div><span><span>I know God knew exactly what He was doing, by single-handedly choosing each one of us to belong to Isaiah.</span></span></div><div><span><span><br /></span></span></div><div><span><span>And picking Isaiah for us.. </span></span></div><div><span><span><br /></span></span></div><div><span><span>I love my precious family.. </span></span></div><div><span><span>my sweet husband and both our children. They are truly a gift from the Lord. </span></span></div><div><span><span><br /></span></span></div><div><span><span>I am so thankful that the triggers are almost non-existent these days. </span></span></div><div><span><span><br /></span></span></div><div><span><span>We can leave home for field trips, visit friends and family, go to co-op and church, and not feel those feelings of dread or fear that once tried to consume. </span></span></div><div><span><span><br /></span></span></div><div><div class="separator" style="clear: both; text-align: center;"><span><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjjW17D5L2fUkUgzQlFPeKz3wrgMTN2QCEcxJpH2rgbyrvQ8ekHh5bxXUEJGmRfmpVeRkKCYFD01fhrbe1A6scnaYD78VTzPvkLFv5ztfYVZqezyh9uRzirXOmO3EsFpQtbCZ-NmjQDlq-iFQBz-ZGiotQM1W6UPTNHGEOjbBhPq_fKmjPuyjHsL2DZVQ/s2493/homeschoolcoop201617.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2348" data-original-width="2493" height="301" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjjW17D5L2fUkUgzQlFPeKz3wrgMTN2QCEcxJpH2rgbyrvQ8ekHh5bxXUEJGmRfmpVeRkKCYFD01fhrbe1A6scnaYD78VTzPvkLFv5ztfYVZqezyh9uRzirXOmO3EsFpQtbCZ-NmjQDlq-iFQBz-ZGiotQM1W6UPTNHGEOjbBhPq_fKmjPuyjHsL2DZVQ/s320/homeschoolcoop201617.jpg" width="320" /></a> </span><div class="separator" style="clear: both; text-align: center;"><span><br /></span></div></div></div><div><span><span>We have enjoyed vacations, and milestones and all the TSW anniversary celebrations. </span></span></div><div><span><br /></span></div><div><span><span>I know those will continue each year. </span></span></div><div><span><span><br /></span></span></div><div><span><span>We laugh and play games, sing and dance, and we "choose joy" because the joy of the Lord is our strength.</span></span></div><div><span><br /></span></div><div><span><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiUMvNziojLv6j6MmbyAjIYaH_ghnIjgoj2X6I92K5vCXjm93rWKkvomVT_HG4T8sji63EykrGuBoeIlTCDqpaDCl4pGpjAsJN-m6vJt39KBp6ctRNGpzHCuBmyX_xch4MbnmhwcNVxnIumDuBjCH9lHLnYZpDtGBTneGxY-UK8b7j69u26-xQR-Qq7ww/s2048/joy.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1536" data-original-width="2048" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiUMvNziojLv6j6MmbyAjIYaH_ghnIjgoj2X6I92K5vCXjm93rWKkvomVT_HG4T8sji63EykrGuBoeIlTCDqpaDCl4pGpjAsJN-m6vJt39KBp6ctRNGpzHCuBmyX_xch4MbnmhwcNVxnIumDuBjCH9lHLnYZpDtGBTneGxY-UK8b7j69u26-xQR-Qq7ww/w400-h300/joy.jpg" width="400" /></a></div><br /><span>Thanks for reading my heart, yet again.. </span></span></div><div><span><span>..and thank you for the kind words and encouragement so many of you have shared with our family over the years. I can't put into words how your love and prayers helped carry us.</span></span></div><div><span><span><br /></span></span></div><div><span><span>We are saying a special prayer today for those of you struggling with anxiety, fear, PTSD, sadness and depression. </span></span></div><div><span><span><br /></span></span></div><div><span><span>God is able.. </span></span></div><div><span><span><br /></span></span></div><div><span><span>You are not alone! </span></span></div><div><span><span><br /></span></span></div><div><span><span>Mental health struggles are real, and your feelings are valid. Acknowledging them is the first step to freedom.</span></span></div><div><span><span> </span></span></div><div><span><span>You can and will be free in your mind. </span></span></div><div><span><span>Even if its just taking it moment by moment.. breathe and pray.</span></span></div><div><span><span>God counts your tears and sees your heart. Call out to Him.. He is faithful..</span></span></div><div><span><span>You will make it out! </span></span></div><div><span><span>~~~</span></span></div><div><i><span>God bless & keep you, always..</span></i></div><div><span><span><i><br /></i></span></span></div><div><i><span>Love, </span></i></div><div><i><span>Stephanie & Isaiah Quinn</span></i></div><div><i><span>Psalm 91</span></i></div><div><span><br /></span></div><div><b><span>Click here for Isaiah's first blog entry:</span></b></div><div><b><a href="https://isaiahquinn.blogspot.com/2013_08_01_archive.html" target="_blank"><span>Baby Isaiah</span></a></b></div><div><h3 style="clear: both;"><br /></h3></div></span></span></div>
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Unknownnoreply@blogger.comtag:blogger.com,1999:blog-3261723211689270452.post-15089418797335077842016-02-14T16:17:00.000-08:002017-06-06T20:21:52.946-07:00Arrrr! TSW Mates! #3 in blog photo series!<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="font-size: large;"><b><span style="font-family: "courier new" , "courier" , monospace;"><span style="font-family: "courier new" , "courier" , monospace;"><span style="font-family: "courier new" , "courier" , monospace;">If you are new here, an<span style="font-family: "courier new" , "courier" , monospace;">d would like to</span></span> read our full TSW journey first,<span style="font-family: "courier new" , "courier" , monospace;"> </span>please cli<span style="font-family: "courier new" , "courier" , monospace;">ck<span style="font-family: "courier new" , "courier" , monospace;"> <a href="http://isaiahquinn.blogspot.com/2013/08/isaiah-quinn.html" target="_blank">HERE</a>.</span></span></span></span></b></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;">(Please be patient as these pics load..</span></div>
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<span style="font-family: "courier new" , "courier" , monospace;">These sweet </span><span style="font-family: "courier new" , "courier" , monospace;"><span style="font-family: "courier new" , "courier" , monospace;">faces are </span>worth the wait!)</span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: medium;">Please click <a href="http://isaiahquinn.blogspot.com/2014/12/my-amazing-update-post-1-in-blog-photo.html">HERE</a> to see the first TSW Pal's post in this series!</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: medium;"> ******* </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: medium;"><span style="font-size: medium;">Please click <a href="http://isaiahquinn.blogspot.com/2015/07/hero-tsw-pals-post-2-in-blog-photo.html">HERE</a><a href="https://www.blogger.com/null"> </a>to see the second TSW Pal's post in this series!</span><br />
<span style="font-size: medium;"> ******* </span> </span></span></div>
<div style="text-align: center;">
<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: medium;">Please click <a href="http://isaiahquinn.blogspot.com/2013_08_01_archive.html">HERE</a> to read Isaiah's full story with pics from the beginning.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: medium;">***** </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: medium;">Please click <a href="http://www.thehomeapothecary.etsy.com/">HERE</a> to head to our Etsy shop to check out our TSW/eczema balms!</span></span></div>
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Unknownnoreply@blogger.comtag:blogger.com,1999:blog-3261723211689270452.post-68680485981619321442015-07-26T21:00:00.000-07:002015-08-06T16:50:35.870-07:00Hero TSW Pals - Post #2 in blog photo series!<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="font-size: large;"><b><span style="font-family: "Courier New", Courier, monospace;">(please click on any photo bl<span style="background-color: white;">ock</span> to enlarge </span></b></span><br />
<span style="font-size: large;"><b><span style="font-family: "Courier New", Courier, monospace;">and please be patient with the pictures as they load.. these sweet faces are definitely worth the wait! :)</span></b></span></div>
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<div style="text-align: center;">
<span style="font-size: large;">Please click <a href="http://isaiahquinn.blogspot.com/2014/12/my-amazing-update-post-1-in-blog-photo.html">HERE</a> to see the first TSW Pal's post in this series!</span><br />
<span style="font-size: large;"> ******* </span><br />
<span style="font-size: large;">Please click <a href="http://isaiahquinn.blogspot.com/2013_08_01_archive.html">HERE</a> to read Isaiah's full story with pics from the beginning.</span><br />
<span style="font-size: large;">***** </span><br />
<span style="font-size: large;">Please click <a href="http://www.thehomeapothecary.etsy.com/">HERE</a> to head to our Etsy shop to check out our TSW/eczema balms!</span><br />
<br />
<span style="font-size: large;"><script src="https://www.etsy.com/assets/js/etsy_mini_shop.js" type="text/javascript"></script><script type="text/javascript">new Etsy.Mini(5531219,'thumbnail',3,3,0,'https://www.etsy.com');</script> </span></div>
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Unknownnoreply@blogger.comtag:blogger.com,1999:blog-3261723211689270452.post-288693118907569202015-04-27T12:25:00.001-07:002015-10-02T10:35:28.765-07:002 year TSW Anniversary post - Isaiah's journey through pics!<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="font-family: "Courier New",Courier,monospace;"> (please click on any pic to enlarge) </span></div>
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<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"> </span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"> <span style="font-size: small;">If you or a loved one have used steroids </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">- even in a very small amount or a short </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">amount of time, like me! - </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">and the "eczema" is spreading or worsening, please visit</span></span></div>
<div style="text-align: center;">
<span style="font-size: large;"><a href="http://www.itsan.org/"><span style="font-family: "Courier New",Courier,monospace;">www.itsan.org</span></a></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">There is LIFE and HEALING after steroid induced eczema..</span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">God bless you all and thanks for reading about my journey!</span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">xo, Isaiah Quinn</span></span><br />
<br />
<br />
<span style="font-family: "Courier New",Courier,monospace; font-size: large;">Click here for next blog post: </span><br />
<span style="font-family: "Courier New",Courier,monospace; font-size: large;"><a href="http://isaiahquinn.blogspot.com/2015_07_01_archive.html">Post #2 in TSW PALS Series!</a></span><br />
<br />
<span style="font-family: "Courier New",Courier,monospace; font-size: large;">Click here to visit my Mom's Etsy shop </span><br />
<span style="font-family: "Courier New",Courier,monospace; font-size: large;">to view our TSW/Eczema balms!</span><br />
<span style="font-family: "Courier New",Courier,monospace; font-size: large;"><script src="https://www.etsy.com/assets/js/etsy_mini_shop.js" type="text/javascript"></script><script type="text/javascript">new Etsy.Mini(5531219,'thumbnail',4,3,0,'https://www.etsy.com');</script> </span></div>
</div>
Unknownnoreply@blogger.comtag:blogger.com,1999:blog-3261723211689270452.post-15716363905599632952014-12-27T09:05:00.001-08:002015-10-02T10:22:55.274-07:00Christmas Blessing...<div dir="ltr" style="text-align: left;" trbidi="on">
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Tonight, I cried....</span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /> We got ready, loaded up in the truck.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">drove 45
mins to look at a huge Christmas lights display.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">A whole caravan of
our family.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Cousins and aunts and uncles and grandparents </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">and even
great grandparents! </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Isaiah did not get uncomfortable </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">even once.. </span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Left
there and headed into the next town </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">for coffee and Panera.. </span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He laughed
and played and was totally content with my daughter in the dark of the
backseat with us..</span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">My husband and I sipped coffee and my daughter </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"> giggled and told me how beautiful I sounded as I sang </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">along with Norah
Jones all the way home.. </span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Huge for our family.. </span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Huge.... </span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">This December has
been a such a turning </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">point in so many ways.. </span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Isaiah had an itch and ooze free
birthday.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Itch and ooze free Christmas..</span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Out and about with no wet wash
cloths and extra balm.. </span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Got home late and didn't even give Isaiah a
bath </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">until after midnight.. </span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He rode his new trike next to my daughter's </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">scooter all day long.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Amazing..</span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /> I found myself tonight rocking him
to sleep.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Holding his soft little hand up against my face, </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">thanking God
for his smooth, scab free little fingers.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">It hit me so hard and the
tears began to flow.. </span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I was back in our chair, that old worn out
recliner, </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">in the dim light from the kitchen and my mind </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">went back to
those months before.. </span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The months we were bound to that chair.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Living
day and night as I held his oozy </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">wet bloody fingers.. Those nights </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">where
I prayed and begged for a miracle.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">When I cried for the torment to
end.. I sighed because </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">there were no words that I even knew to speak.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I
wished for change.. My heart was heavier than </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">my mind thought I could
even bear back then,</span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">only a few short months ago.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I hoped for life to
come to our son and our home again.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I wanted a 'normal' day and night.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I wanted Isaiah to enjoy life and be pain free.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Just to rest on a
light pillow, not a bed of suffering.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I counted the minutes that felt
like they would never end..</span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The months that seemed to stand still </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">as life was moving and continuing around us.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"> Seemed to be leaving us behind.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">... </span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">My mind went back to that place, and I
fully realized we have overcome that hell.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We have survived.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Our son
is alive and thriving.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We have made a full year with </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">NO hospital stays
with Isaiah .. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">NO doctor visits! We have now had almost </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">a full month
with no gauze.. </span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Huge....</span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /> I wanted to say to you that are in those
dark nights of TSW</span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">that seem to never end, hang on!! </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Dawn does come! Life comes
back! </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Hope will fill your hearts again and the tears </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">that fall will not
be full of pain, </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">but of thankfulness and joy.. </span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Don't ever give up! </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Ever!! </span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Even when you think you can't make it another moment.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Push
through!! You are stronger than you know </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">and more capable than you even
realize..</span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">You are brave and courageous and you will win this fight! </span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">You
are an overcomer!! </span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">My love is so deep for you all </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">and Isaiah and I could
have never made it to this </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">place without you.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We are here for you! </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">And
will help carry you with our love and prayers.. </span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Keep moving forward..</span></span></div>
<div style="text-align: center;">
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<span style="font-size: large;"><b><span style="font-family: "Courier New",Courier,monospace;">Next blog post - click here: <a href="http://isaiahquinn.blogspot.com/2015_04_01_archive.html">MY TWO YEAR TSW UPDATE!!</a></span></b></span></div>
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Unknownnoreply@blogger.comtag:blogger.com,1999:blog-3261723211689270452.post-59547230664490565012014-12-08T22:01:00.000-08:002015-03-31T20:16:09.093-07:00My AMAZING update! Post #1 in blog photo series<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="font-family: "Courier New",Courier,monospace;">(please click on any pics to enlarge)</span><br />
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<b><span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: large;">Next Blog Post:<br /><a href="http://isaiahquinn.blogspot.com/2014/12/christmas-blessing.html">Christmas Blessing</a></span></span></b></div>
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Unknownnoreply@blogger.comtag:blogger.com,1999:blog-3261723211689270452.post-35966664856695950772014-05-21T21:20:00.001-07:002015-07-14T07:27:02.930-07:00Happy Anniversary Isaiah! One YEAR topical steroid free! <div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="font-size: large;"><span style="font-family: "Courier New",Courier,monospace;">ONE YEAR STEROID FREE! </span></span></div>
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<span style="font-size: large;"><span style="font-family: "Courier New",Courier,monospace;">What a YEAR!</span></span></div>
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<span style="font-size: large;"><span style="font-family: "Courier New",Courier,monospace;">and what a MILESTONE!</span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">There will never be enough words to describe the </span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">past twelve months of our lives. </span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><br />So much has happened that has stretched me in ways I could have never fathomed..<br /><br />Looking back,</span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">especially at the suffering and the pain</span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><br /><b>it is an absolute miracle we survived:</b></span></span></div>
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<b><span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">physically</span></span></b></div>
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<b><span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">mentally</span></span></b></div>
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<b><span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">and emotionally..</span></span></b></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><br /></span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">It has been a season that I don't think I will ever fully understand but I do look at the new people God has </span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">placed in our lives..</span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><br /></span></span></div>
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<b><span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">some across oceans.. </span></span></b></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><br /></span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">and I do see </span></span><br />
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<b><span style="font-size: large;"><span style="font-family: "Courier New",Courier,monospace;">His</span><span style="font-family: "Courier New",Courier,monospace;"> PURPOSE...</span></span></b></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><br /></span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">I see His divine will threading us together with </span></span></div>
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<b><span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">complete strangers </span></span></b></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><br /></span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">that in many ways now seem more like </span></span><br />
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><b>family..</b><br /><br />Connecting, loving, sharing, crying, caring, understanding..</span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><br />as there are not many that 'get' a season such as this </span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">unless you're the one living it..<br /><br />**********</span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">Every year during spring, I clean off the back porch and </span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">winter's barrenness</span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">and love to get my hands dirty in rich soil..</span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><br />I always had a pair of hands and </span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">little fingers in the dirt with me.. </span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><br />The above pics were from 2011..</span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><br />The planter pots were my great grandmother's</span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">and every year up to 2012, we always filled them with elephant ears - Caladiums - and loved looking at them all season.</span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><br />When she was alive and had them on her own front porch, </span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">they were always filled with them and I can remember their beauty as a child sitting with her in her old green rocking chairs shelling field peas and butter beans.</span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><br />In 2012, I was pregnant with Isaiah and had quite </span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">the miserable pregnancy.. </span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">I was nauseous and sick almost the entire 9 months.<br /><br />That year there were no elephant ears planted..</span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">and then in 2013, there were almost 3 entire seasons: </span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">spring, summer and fall </span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">where I did not even look outside the windows of our home</span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">unless we were in the truck </span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">headed to the doctor or the hospital and </span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">that is no exaggeration in the least.</span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><br />I remember thinking:</span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><br />"It's practically been one. long. winter. ...'</span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"> </span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhbyM2EF6w6lrH6H0PScBjAXhzT9LYjsNibohykwrVmI-k7S7CZxL8gDnhPzAU2fk50ApUBvkDsaYFdwWNYngx1MjkB0p1MUn73TfYwzQ7SAFQiWnwfPD1aDlntUcYI8Z878MLs_6b7ejIx/s1600/103_6785.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhbyM2EF6w6lrH6H0PScBjAXhzT9LYjsNibohykwrVmI-k7S7CZxL8gDnhPzAU2fk50ApUBvkDsaYFdwWNYngx1MjkB0p1MUn73TfYwzQ7SAFQiWnwfPD1aDlntUcYI8Z878MLs_6b7ejIx/s1600/103_6785.JPG" width="640" /></a></span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">One awfully long, cold, dead, dry winter..</span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"></span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">A winter that I will never forget and one that </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I don't ever want to re-live.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"> *****<br />As Isaiah's health started improving so much and we began to breathe again, life was coming back to each of us </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">and back in our home..</span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">Things are now a new normal.. :)<br /><br />For months, as many of you know, Isaiah stopped meeting his milestones and was labeled 'failure to thrive' </span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">all due to the topical steroid use and withdrawal as an infant.<br /><br />Because of that, he did not start crawling until he was </span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">almost 10 months old and in November, when his health really started heading in the right direction, </span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">we were almost 8 months TSW.. </span></span><br />
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">That is when he finally began gaining weight and we saw an even bigger shift than the one he had when we left Emory in August.</span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><br />He was still very itchy, red and raw on much of his skin so we kept him strategically corralled in our living room by the furniture and the toy and gauze bins with a super large California King flat sheet on the floor..</span></span><br />
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">We had to use the sheet as a covering over the large rug and carpet as he would sometimes scrub and rub his face across the sheet to itch his cheeks.</span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgOoXJr7LiuDZEXPS4k8wGzHEwtBF7Q3RhMvDNd9s275oxI-whPeufC27jcOYr7pS119y3O-bqd3Y3dffF8jXIS80F5YWUQusnI4g2qLzWqi5pro3QOdvBQtwVGzm2-I4_XwabyLKpHG_4s/s1600/103_6867.JPG" style="margin-left: 1em; margin-right: 1em;"><br /></a></span></span></div>
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">During
that time was when the infections were a daily battle and there was a
lot of open skin, so we really didn't want that sweet little face
sliding against the carpet.<br /><br />He caught up really well and really fast as he began walking at 13 months just like his big Sissy.. :)</span></span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhumtD5ZHbIBEZM8i8gca9CqTNCEK70KbChS_XHgN3SoO85zibbSbp3wulTPbGLBPt9hmunBgt9xmPK30RJPmLu79ZtblyA5kc_HRszg4mgiVFSAZWEARlA5ImgqHmGFQknx-m0Nol9tbsK/s1600/infection.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><br /></a></div>
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjVQG7nOEsknzy7tHJ8v7802LT8avKBsGrPxMTBAqKlaR1l1UPPWRDmqq_xbElOmYZW_T-7jZIttkjzbPdf4H3vLG4ag5yxlcDpz63yCWAVD1CsYIeFXOmB0k1pgALINf7aV9kMivXfhW3S/s1600/lemongrass.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjVQG7nOEsknzy7tHJ8v7802LT8avKBsGrPxMTBAqKlaR1l1UPPWRDmqq_xbElOmYZW_T-7jZIttkjzbPdf4H3vLG4ag5yxlcDpz63yCWAVD1CsYIeFXOmB0k1pgALINf7aV9kMivXfhW3S/s1600/lemongrass.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"></a><span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">He has had fantastic skin since we kicked that infection with the homemade Lemongrass balm in January:</span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhumtD5ZHbIBEZM8i8gca9CqTNCEK70KbChS_XHgN3SoO85zibbSbp3wulTPbGLBPt9hmunBgt9xmPK30RJPmLu79ZtblyA5kc_HRszg4mgiVFSAZWEARlA5ImgqHmGFQknx-m0Nol9tbsK/s1600/infection.jpg" style="margin-left: 1em; margin-right: 1em;"></a> </span></span></div>
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<a href="http://www.etsy.com/shop/thehomeapothecary"><img alt="Click here for our Lemongrass Balm!" border="0" height="183" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQKe-Gi970C-nspDZOh4Af4ESmDe_0AW5bNECFVuSlV8F1XKkDA86lwoKuefPsK-Ia8PsowZuVyxrUvcj7c_Hc52vkR7pfPAbfppZ4ctYp_FIob2bV035sVaDywP42GQlfg3-je-NZIQUe/s1600/infectionlemongrass.JPG" width="400" /></a><br />
<br />
<span style="font-size: small;"><a href="http://www.etsy.com/shop/thehomeapothecary"><span style="font-family: "Courier New",Courier,monospace;">Click here for our Etsy shop and our Lemongrass Balm</span></a></span><br />
<br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"> We have still been bathing and wrapping him to help with the itch, now mainly only once per day.. </span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">so glad, as I remember only a few months ago he lived in the baby bath, soaking up to 12 times per<span id="goog_226542890"></span><span id="goog_226542891"></span> day!</span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">I forgot to turn on my date stamp on some of these pics but all of the following ones are from March 2014 - 10 months TSW..</span><br /><span style="font-family: "Courier New",Courier,monospace;"><span style="font-family: "Courier New",Courier,monospace;">Best month yet since Dec..</span></span></span><br />
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQdHs1eGS7GlwG07dnUGuPVBduaxppZc8QDDWekcucgDNQd4sYr2BkuIz95Tfi6U3cgfN9rbJu4DvAtxajb9zy-agNMd7WpopnwOymqwssV3DNrRK4BaCIe4hi590r955mVITQgBvUaJDT/s1600/103_6557.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQdHs1eGS7GlwG07dnUGuPVBduaxppZc8QDDWekcucgDNQd4sYr2BkuIz95Tfi6U3cgfN9rbJu4DvAtxajb9zy-agNMd7WpopnwOymqwssV3DNrRK4BaCIe4hi590r955mVITQgBvUaJDT/s1600/103_6557.JPG" width="400" /></a> </span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">(the boo boo on his nose is not TSW..</span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">he fell into his toy box - regular kid troubles! :) )</span></span><br />
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjb4-YWajXlcEIlaYJ7iiF373EQFxUWsHhv_R88YfJ6Fq8py27LMDV1UxFFtUxLwqu3oUMcHOqA86QmtygrAX2kA1B2entf9ZcPLzc9Curss0FlxNUgaKz7SVYEiZd_186FWCnB_ibxRS_h/s1600/103_6538.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjb4-YWajXlcEIlaYJ7iiF373EQFxUWsHhv_R88YfJ6Fq8py27LMDV1UxFFtUxLwqu3oUMcHOqA86QmtygrAX2kA1B2entf9ZcPLzc9Curss0FlxNUgaKz7SVYEiZd_186FWCnB_ibxRS_h/s1600/103_6538.JPG" width="572" /></a><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdHpeUKqMapheSvTRsP4ECrgFDOVRNjdxESldpcGCTU5sfjoVkrBGD5T043LikMBgh41Gp_r96kfl26b_90qU1RZe2s2TPSQjBs7VzOvXLfLkMz3lxhgBJt5mhvDxBrp_tly8vzmPdXZ6Y/s1600/103_6527.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdHpeUKqMapheSvTRsP4ECrgFDOVRNjdxESldpcGCTU5sfjoVkrBGD5T043LikMBgh41Gp_r96kfl26b_90qU1RZe2s2TPSQjBs7VzOvXLfLkMz3lxhgBJt5mhvDxBrp_tly8vzmPdXZ6Y/s1600/103_6527.JPG" width="400" /></a> </span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">His skin was so beautiful on many of these days, all the way through the end of March..<br /><br />His little neck that had been really red the entire time was showing clear skin finally!<br /><br />He was even getting some of the beautiful skin tone back that he was born with..</span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhE6rWKE0fmdx9jJDsydJar6BqLzrsxtaVI0AaqSnwGEy41R1KGHGIm2dp0505pzD6uFLHVzZjAv1wc0pAqeFpf9PmogdhCs7rfvgsOdp5-OfXW8POj9XxZR8ewgVc__c4pW_KJISlObsII/s1600/103_6699.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhE6rWKE0fmdx9jJDsydJar6BqLzrsxtaVI0AaqSnwGEy41R1KGHGIm2dp0505pzD6uFLHVzZjAv1wc0pAqeFpf9PmogdhCs7rfvgsOdp5-OfXW8POj9XxZR8ewgVc__c4pW_KJISlObsII/s1600/103_6699.JPG" width="480" /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-qEZKwQAGvWd56tj5cgR1Bx1sL-ieenL1bzt75Hd6vFGLM3WsBmP8LEg_lmoYAswsxVe2eixuX8ACzTJ5_GgLwRzgcXVLs_m0Y07a1y-p8wTEISON1h7X45rgKWmlbV9g5OqXpy6LHe6w/s1600/103_6698.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-qEZKwQAGvWd56tj5cgR1Bx1sL-ieenL1bzt75Hd6vFGLM3WsBmP8LEg_lmoYAswsxVe2eixuX8ACzTJ5_GgLwRzgcXVLs_m0Y07a1y-p8wTEISON1h7X45rgKWmlbV9g5OqXpy6LHe6w/s1600/103_6698.JPG" width="400" /></a></span></span><br />
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">Soon, it was very hard to keep our </span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">Little Climber from trying to scale the bins and the furniture to be as free as we all were. </span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgOoXJr7LiuDZEXPS4k8wGzHEwtBF7Q3RhMvDNd9s275oxI-whPeufC27jcOYr7pS119y3O-bqd3Y3dffF8jXIS80F5YWUQusnI4g2qLzWqi5pro3QOdvBQtwVGzm2-I4_XwabyLKpHG_4s/s1600/103_6867.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgOoXJr7LiuDZEXPS4k8wGzHEwtBF7Q3RhMvDNd9s275oxI-whPeufC27jcOYr7pS119y3O-bqd3Y3dffF8jXIS80F5YWUQusnI4g2qLzWqi5pro3QOdvBQtwVGzm2-I4_XwabyLKpHG_4s/s1600/103_6867.JPG" width="320" /></a></span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><br /></span></span>
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">We opened up the big playroom down the hall </span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">as that was a new adventure for him. </span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">He was soon running, keeping in Sissy's footsteps and usually tripping us all up, </span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">hanging onto pants and legs as little ones do.</span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">We have now removed the bins and opened up most of the house to him. He is no longer scratching his face on the floor..</span></span><br />
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">Such a blessing!</span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">He is also eating many foods and so far has shown no reactions..</span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><br />another blessing!!</span></span><br />
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEip_lwThTWV-ALrDhyphenhyphend5BimSHFssTsXVjelxNJ8xzCd_HMFXGtMw1g2AkQ5dP1JeAafcmVNgMjSXtAyG1I6WGJXgxwqVUskK6WWiFRKUIMyiyvL7tTWcD1LT_agjnylSgLoVodosKEfCGjY/s1600/100_7064.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEip_lwThTWV-ALrDhyphenhyphend5BimSHFssTsXVjelxNJ8xzCd_HMFXGtMw1g2AkQ5dP1JeAafcmVNgMjSXtAyG1I6WGJXgxwqVUskK6WWiFRKUIMyiyvL7tTWcD1LT_agjnylSgLoVodosKEfCGjY/s1600/100_7064.JPG" width="400" /></a><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">He is still on Neocate daily but really likes fruits and veggies</span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">and so far loving everything he has tasted except kiwi:)</span></span><br />
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">He loves rice and gravy with potatoes and carrots and would have licked the plate if we would have let him, last time he had it! </span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">..after Neocate for the past few months, </span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">I can't say I blame him!</span></span><br />
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">In the beginning of April he started a light flare </span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">much like the ones in the last few months..</span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><br />No ooze.. just redness and slightly heightened itching..</span></span><br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><br />This one seemed to affect his hands the most, as they had been quite clear and looking pretty good up to that point..</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He had a little redness come back up under his neck as well.. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He actually was able to go outside and enjoy the sun in nothing but crocs and a diaper! <br /> </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">First time ever!</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">That week my daughter and I made it out to the back porch..<br />we re-potted and planted..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br />It felt so good to do that again!</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The back porch is beautiful now!</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br />One of the plants my husband bought me bloomed that week..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The end of that week, he began to get really pale and cranky</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">and I sensed he may be starting another flare..<br />I had not seen him pale like that in a long time..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br />This one came on pretty hard and quick..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">much more so than the last few months..<br /><br />Within 4 days, his face was super red..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">much more than I had seen in a long time..<br />It actually cracked open and looked wet..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br />I can't really call it ooze, as it was no where near the oozy patches he had in the past, but this was definitely the worst flare he has had in months..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br />I actually had to give him Wal-Dryl in the middle of the night for 2 nights that week, </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">and I had not had to do that since January..<br />:(</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">By the 18th of April, he was feeling better and the flare was drying out and beginning to flake off..<br />Those were the biggest skin flakes I had seen in months..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">It actually started back a few days later and carried into May, but nothing like the previous months.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /> ********</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">At this point he is out of wraps ALL DAY - only being wrapped at night, which is a huge milestone in itself!<br />He actually wore short sleeves last </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Sunday for the first time EVER!! </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We were so excited!</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He is doing so well, and although he is still withdrawing, he is feeling more and more like a "normal" child..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">our lives are definitely headed OUT of this season.<br />He is happy and laughs and plays every day and we know we will soon be able to get back to church, family outings and hopefully even a vacation soon! </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Our whole family needs a week at the beach or a trip to Disney (or BOTH! lol) after this season!</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br />We are working with some wonderful people too, to start the change that is needed in the medical community and the general public as a whole - to put Topical Steroid Withdrawal on the map and save others from the suffering </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">that so many have now experienced.. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">(More on that in a future post soon!!)<br /><br />oh, and there are Caladiums filling those beautiful <br />planters this year! <br />:)</span></span><span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEguqNJwfcQhT046kPcu4PiZXwc9st2gI0VDVTuseMX7Yyn_Iqbgb4WpgxwAE9dl5Iqj9kueaE3lnokFILPrlhTo-bCAzWd74oUn-ZSo-RDPRbwR0qKPwzFL7nzQjTiipkIoD3xVsM7ukYFz/s1600/100_7146.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEguqNJwfcQhT046kPcu4PiZXwc9st2gI0VDVTuseMX7Yyn_Iqbgb4WpgxwAE9dl5Iqj9kueaE3lnokFILPrlhTo-bCAzWd74oUn-ZSo-RDPRbwR0qKPwzFL7nzQjTiipkIoD3xVsM7ukYFz/s1600/100_7146.JPG" width="400" /></a><br />*******<br /><br />On our ONE YEAR </span></span><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEguqNJwfcQhT046kPcu4PiZXwc9st2gI0VDVTuseMX7Yyn_Iqbgb4WpgxwAE9dl5Iqj9kueaE3lnokFILPrlhTo-bCAzWd74oUn-ZSo-RDPRbwR0qKPwzFL7nzQjTiipkIoD3xVsM7ukYFz/s1600/100_7146.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">we just want to say </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">THANK YOU</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">first to our Lord and Savior..<br />JESUS CHRIST<br />For it is by HIS stripes, we are HEALED..<br /><br />Thanks be to GOD, <br />for helping carry us through </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">and birth so many beautiful things in our lives from this season..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">we will never be the same!<br /><br />and also, Thank You to the beautiful people we have met on this journey, </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">many who are in TSW themselves..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">who love us, encourage us, uplift us, pray for us </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">and walk with us..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">WE LOVE YOU and are PRAYING FOR YOU ALL!!<br />Thanks so much for reading our blog and keeping </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">our little Isaiah in your prayers.. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">your prayers have carried us though!<br /> </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">God Bless and Keep You..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Perfect health and wholeness to flood your lives..<br /><br />Psalm 121</span><span style="font-size: small;"><br /><span class="chapter-3"><span class="text Ps-121-1">I lift up my eyes to the hills.</span></span><br /><span class="indent-1"><span class="indent-1-breaks"> </span><span class="text Ps-121-1">From where does my help come?</span></span><br /><span class="text Ps-121-2" id="en-ESV-16084"><sup class="versenum">2 </sup>My help comes from the <span class="small-caps" style="font-variant: small-caps;">Lord</span>,</span><br /><span class="indent-1"><span class="indent-1-breaks"> </span><span class="text Ps-121-2">who made heaven and earth.</span></span> </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><span class="text Ps-121-3" id="en-ESV-16085"><sup class="versenum">3 </sup>He will not let your foot be moved;</span><br /><span class="indent-1"><span class="indent-1-breaks"> </span><span class="text Ps-121-3">he who keeps you will not slumber.</span></span><br /><span class="text Ps-121-4" id="en-ESV-16086"><sup class="versenum">4 </sup>Behold, he who keeps Israel</span><br /><span class="indent-1"><span class="indent-1-breaks"> </span><span class="text Ps-121-4">will neither slumber nor sleep.</span></span></span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><span class="text Ps-121-5" id="en-ESV-16087"><sup class="versenum">5 </sup>The <span class="small-caps" style="font-variant: small-caps;">Lord</span> is your keeper;</span><br /><span class="indent-1"><span class="indent-1-breaks"> </span><span class="text Ps-121-5">the <span class="small-caps" style="font-variant: small-caps;">Lord</span> is your shade on your right hand.</span></span><br /><span class="text Ps-121-6" id="en-ESV-16088"><sup class="versenum">6 </sup>The sun shall not strike you by day,</span><br /><span class="indent-1"><span class="indent-1-breaks"> </span><span class="text Ps-121-6">nor the moon by night.</span></span></span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><span class="text Ps-121-7" id="en-ESV-16089"><sup class="versenum">7 </sup>The <span class="small-caps" style="font-variant: small-caps;">Lord</span> will keep you from all evil;</span><br /><span class="indent-1"><span class="indent-1-breaks"> </span><span class="text Ps-121-7">he will keep your life.</span></span><br /><span class="text Ps-121-8" id="en-ESV-16090"><sup class="versenum">8 </sup>The <span class="small-caps" style="font-variant: small-caps;">Lord</span> will keep</span><br /><span class="indent-1"><span class="indent-1-breaks"> </span><span class="text Ps-121-8">your going out and your coming in</span></span><br /><span class="indent-1"><span class="indent-1-breaks"> </span><span class="text Ps-121-8">from this time forth and forevermore.</span></span></span></span></div>
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<script src="http://www.etsy.com/assets/js/etsy_mini_shop.js" type="text/javascript"></script><script type="text/javascript">new Etsy.Mini(5531219,'thumbnail',4,3,0,'http://www.etsy.com');</script><span style="font-size: large;"><b><span style="font-family: "Courier New",Courier,monospace;">Next Blog Post:<br /><a href="http://isaiahquinn.blogspot.com/2014/12/my-amazing-update-post-1-in-blog-photo.html">My TSW Friends Amazing Update</a>!</span></b></span><br />
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Unknownnoreply@blogger.comtag:blogger.com,1999:blog-3261723211689270452.post-7566778217509794232014-04-18T18:46:00.000-07:002015-03-31T20:12:57.624-07:00Fun Post!<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: large;">We are getting close to our 1 year </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: large;">TSW anniversary</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: large;">so we wanted to do a fun post</span><span style="font-size: large;">!<br />:) </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: large;"><br />Many of the kids going through TSW have to miss out on fun bath times..</span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: large;"><br />No bubbles and soaps of any kinds..<br />:(<br /><br />Isaiah is still in his baby bath<br />so we have not been able to do this with him yet, but this is my daughter<br />who LOVES it when bath time involves</span></span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhomLrjePugU2qGZTU8MGhz8-GL93KMdiP3dGqudaIQMri9kRJFX99nMVS3Qm_EU6SZ095DZhxdaifBJKLVaX4Hht-qgKUx2RvCrghZ69eLRIcz7P_IR06SNZf_M6K7B9PLgSd93oQN0_Ed/s1600/bathtubglowsticksariana.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhomLrjePugU2qGZTU8MGhz8-GL93KMdiP3dGqudaIQMri9kRJFX99nMVS3Qm_EU6SZ095DZhxdaifBJKLVaX4Hht-qgKUx2RvCrghZ69eLRIcz7P_IR06SNZf_M6K7B9PLgSd93oQN0_Ed/s1600/bathtubglowsticksariana.jpg" height="300" width="400" /></a></div>
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<b><span style="font-size: x-large;"><span style="font-family: "Courier New",Courier,monospace;"> glowsticks!</span></span></b></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhmV7nhfirEH9dJikfag4pC8BoYhz_RlUNyNyO_foEOCRXntpg4Q8g2GEqGiw7dZ8hUrKYFFTKQkl3Y2Ovi0Q2wdoQiOtDcPf4IWG4axWuEr_8shZy5PpdONUGX72Vu6Lvm8QYRhjwX8-z8/s1600/bathtubglowsticks.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhmV7nhfirEH9dJikfag4pC8BoYhz_RlUNyNyO_foEOCRXntpg4Q8g2GEqGiw7dZ8hUrKYFFTKQkl3Y2Ovi0Q2wdoQiOtDcPf4IWG4axWuEr_8shZy5PpdONUGX72Vu6Lvm8QYRhjwX8-z8/s1600/bathtubglowsticks.jpg" height="300" width="400" /></a></span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: large;">Use the big,thick ones<br />as the smaller ones sometimes break..</span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: large;"><br />Just toss them in and the kids are amazed! <br /><br />God bless all of you children in the midst of TSW.. hope you can have some fun in your baths!</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: large;"><br />Happy Easter!</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: large;"><span style="font-size: x-large;"><b>HE IS RISEN!</b></span></span></span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1RmteE8UxyQwsPORhHllhc4ifRPvgdrImTnXsU8ksrzGwImeAF-7p4wqbobsP31MaI15pW09JERVyTRBj3n5IDoQLnLssmKu3tuErWzkYnl6UYBo6uwIpxen986XNWfiiNEB9K9CsjQvN/s1600/cross.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1RmteE8UxyQwsPORhHllhc4ifRPvgdrImTnXsU8ksrzGwImeAF-7p4wqbobsP31MaI15pW09JERVyTRBj3n5IDoQLnLssmKu3tuErWzkYnl6UYBo6uwIpxen986XNWfiiNEB9K9CsjQvN/s1600/cross.jpg" height="180" width="320" /></a></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: large;"><span style="font-size: x-large;"><b>Next Blog Post:</b></span></span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: large;"><span style="font-size: x-large;"><b><a href="http://isaiahquinn.blogspot.com/2014_05_01_archive.html">ONE YEAR TSW Anniversary</a>! </b></span></span></span><br />
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Unknownnoreply@blogger.comtag:blogger.com,1999:blog-3261723211689270452.post-76846608428618478762014-02-13T14:51:00.003-08:002019-12-21T18:27:54.898-08:002014 is our year of total health and happiness!!<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"> Been a while since we updated..<br />A lot to catch up on! </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">A lot has changed too in our daily lives and our routine..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">On February 22 we will be NINE months steroid free! <br />Praise the Lord!</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"> This was Isaiah in December </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">-- another skin infection --<br />:( </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">.. we had been fighting this one since mid Nov..<br />Bleach baths :( !!!, epson salt, dead sea salt, bactroban </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">antiobiotic ointment, neosporin, etc..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><br />You name it, we tried it, and nothing was helping..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">the infection bumps continued to spread.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><br />He was super itchy and miserable and I didn't get a lot of pics during that time..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><br />Here you can see them on his face although they were all over his stomach and back too.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjsSwXVUuP-fjegZNT_rCcUVfsQvFStqJ9f4fosLTXd_qF8CSMLH6FWXRop7DhZvC0A5aeg_9_8YvWzx0UF7J87PvrMaRVAepzm451xadl0D6-5FcZN-oPB_U6KIl420lDozfXtMyZC2Ioz/s1600/103_5640.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjsSwXVUuP-fjegZNT_rCcUVfsQvFStqJ9f4fosLTXd_qF8CSMLH6FWXRop7DhZvC0A5aeg_9_8YvWzx0UF7J87PvrMaRVAepzm451xadl0D6-5FcZN-oPB_U6KIl420lDozfXtMyZC2Ioz/s1600/103_5640.JPG" width="320" /></a></span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"> On Dec 13th, we called his ped and got an </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">oral antibiotic: Erythromycin</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><br />It was a 10 day round and by the end of it, his skin looked the best it had since we started this whole process, 7 months before.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"> He had a wonderful Christmas with fantastic skin! </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Was not even itchy! It was amazing!</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Such a blessing!</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">When these pictures were taken, he was on day 7 and 8 of the 10 day oral antibiotic:</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi709geFNdZSRThaYRaS1G_Fr-8LIr_mUnrGN2xCHso0yvbQq6DgPrFQCMXUpyDOCIxW7K0DPBQ9QEbjgGQLINt8oNwSZruccGNqgdrpW2I_wcU3LdQTPDtW0h77bquc6rSVUWdRd__7eNB/s1600/103_5792.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi709geFNdZSRThaYRaS1G_Fr-8LIr_mUnrGN2xCHso0yvbQq6DgPrFQCMXUpyDOCIxW7K0DPBQ9QEbjgGQLINt8oNwSZruccGNqgdrpW2I_wcU3LdQTPDtW0h77bquc6rSVUWdRd__7eNB/s1600/103_5792.JPG" width="320" /></a></span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjABtB0aGrUZl7O8zKfLW7LpQOe7ddV3rrdQ4minNXLP9UhuoiwMphqZXUxiqbcmshAoyIlEPV467I8xf9Yd7MlMYWeK3rHeiFAHC7tXRGKKLb7Cxnv8SoGSi1S09J2X84Pys3k5s1nSXX1/s1600/103_5846.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjABtB0aGrUZl7O8zKfLW7LpQOe7ddV3rrdQ4minNXLP9UhuoiwMphqZXUxiqbcmshAoyIlEPV467I8xf9Yd7MlMYWeK3rHeiFAHC7tXRGKKLb7Cxnv8SoGSi1S09J2X84Pys3k5s1nSXX1/s1600/103_5846.JPG" width="400" /></a></span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjiYyKQWWtrVvNHrU8evFpMaYmm9rrl6C3OqV0JRuTZHsC-0Sp13oNN2bzyWmZedNgo_dJKWrt-23K4TANjkUy0Od9eS22P5eKZRcIXvx5DMS_3yjuwqklThuEdKZxIqOjgYGXm7ArDqta1/s1600/103_5829.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjiYyKQWWtrVvNHrU8evFpMaYmm9rrl6C3OqV0JRuTZHsC-0Sp13oNN2bzyWmZedNgo_dJKWrt-23K4TANjkUy0Od9eS22P5eKZRcIXvx5DMS_3yjuwqklThuEdKZxIqOjgYGXm7ArDqta1/s1600/103_5829.JPG" width="320" /></a></span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">We ended up able to go see family on Christmas too!</span></span><br />
<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">First time we had been able to leave the house in months.<br />We finished the antibiotic and all but 2 tiny bumps on his back cleared and they were only the size of a pin head. TINY!<br /> </span></span><br />
<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">I was relieved but kept a close eye on them.<br /> </span></span><br />
<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi4hzu0Ku3a_j-aixsvylhmDG55HozwDX7Vvus8e44TxUDN2WQlp12XVbuN7m2Fkg5PEpjhVlk-dKInAlPHj6CY3aTvsWqPCGS3mcn4Qye31uIN8a3xTZ1FMmTAG_lkPQWpFd2bTRtiO9Yx/s1600/103_6101.JPG" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"></a>For a few weeks, they stayed the same and he was doing really well.</span></span><br />
<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><br />Then in early January, the 2 bumps turned into 200+..</span></span><br />
<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><br />They began over the next few weeks to clump together and started forming lesions..<br />They were everywhere..</span></span><br />
<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">face, back of head, tummy, back, arms and were starting down his little legs..</span></span><br />
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"> He was prescribed another round of 10 day </span></span><br />
<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Erythromycin on Jan 13, 2014 but this time, </span></span><br />
<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">it did not phase it.. </span></span><br />
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">The infection continued to spread rapidly and it was horrible..<br />He was so itchy and unhappy..</span></span><br />
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"> I was at a loss.. <br />My husband and I prayed and </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Isaiah and I cried a lot of the days away.. <br />It was so depressing after having such clear skin at </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">the end of December..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">We were beyond ready for this journey to be over.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">I thought we were going to end up sleeping in the recliner again because he itched like crazy and could hardly rest.. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">when he doesn't sleep, I don't either.. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Since we have been in the bed and out of the recliner I have had to sleep with his hands in mine every night.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Many people do not know this but my husband and I fasted the entire month of January as the </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Lord led us to. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Our daughter even decided to give up TV and video games as her act of sacrifice. <br />(It was NICE not having tv for an entire month!!!) </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">We had worship music on day and night..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">There are seasons where we feel led to do so, and wanted to give the entire first month of the year to our Lord, </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">dedicated in fasting and prayer. <br />It was hard! For all of us and especially when the enemy was trying his best to attack Isaiah's body again.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">We pressed..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">We prayed..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">We worshiped.. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Towards the end of January, the Lord led me on a wisdom journey..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"> I was mind blown and knew the Lord was giving us our answer for Isaiah and the infection dilemma. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">We started soaking Isaiah in Bragg's Apple Cider vinegar in his baby bath wrapped in towels - started off with 1 cup and now soak easily in 2 cups.. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">- we also add 3/4 cup of Dead Sea Salt or Pink Himalayan and he takes 1 to 2 baths daily..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">I started making the balms with organic ingredients and we coat him in them and dry wrap him in gauze after every bath..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">I have now also made the balms for many others in topical steroid withdrawal and for friends and family.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">They work so well! :) Praise God!<br /><br />We have received some awesome testimonials and before and after pics and this has now birthed balms of all sorts and a wonderful ministry for our family.. Beauty for ashes!</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">I use a mix of 3 of our balms on Isaiah now daily</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">- our Melissa, Lemongrass and Zinc balms -</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">and he is the most comfy after a bath, balm and wraps!</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">They have been nothing short of a miracle on Isaiah's body!</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">God is the Great Physician!! </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">and when we ask for wisdom, He gives it liberally..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">By request of so many, we have reopened our old Etsy shop as we have been sharing the balms through our facebook page. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"> The combo of acv and the balms have worked wonders on the infection bumps as you can see below.. </span></span><br />
<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">(my date stamp was wrong on the pics below! it says 2013, but it was 2014 :) </span></span><br />
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"> </span></span><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQynFXGE9gPnWCNHAtHYnUWqB8C7k4pff7661DQOn7HpXDtiEgElay0yz7HMhgi0TaoBWOZvq9gH1kmRA3gcduXUJHgalLa6fauK6CRj6PrSsqlkFVr_BqS6LCEzLq4V9bq2Iiy_0G91xK/s1600/103_6145.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQynFXGE9gPnWCNHAtHYnUWqB8C7k4pff7661DQOn7HpXDtiEgElay0yz7HMhgi0TaoBWOZvq9gH1kmRA3gcduXUJHgalLa6fauK6CRj6PrSsqlkFVr_BqS6LCEzLq4V9bq2Iiy_0G91xK/s1600/103_6145.JPG" width="320" /></a></div>
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<span style="font-family: "courier new" , "courier" , monospace; font-size: small;">Thanks for your continued prayers for our family..<br />We love and appreciate them all!<br /><br />Pressing into Christ and our health and wholeness in Him..</span><br />
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<span style="font-family: "courier new" , "courier" , monospace; font-size: small;">2014 is our year of total health and happiness!</span><br />
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<span style="font-family: "courier new" , "courier" , monospace; font-size: small;">Psalm 30:5</span></div>
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<span style="font-family: "courier new" , "courier" , monospace; font-size: small;"> Weeping may endure for a night, but joy comes in the morning<b>.</b></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: large;"> </span></span><b><span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><span style="font-size: large;">Revelation 22:2</span></span></span></b></div>
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<b><span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><span style="font-size: large;"><span class="text Rev-22-2" id="en-ESV-31067">The leaves of the tree were for the healing of the nations.<br /><br /><a href="http://isaiahquinn.blogspot.com/2014_04_01_archive.html">Click here for Next Post: FUN POST for Bath Time!</a></span></span></span></span></b></div>
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Unknownnoreply@blogger.comtag:blogger.com,1999:blog-3261723211689270452.post-28428776315022172702013-11-02T19:18:00.004-07:002016-05-12T17:19:16.572-07:00Healing is happening!<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="font-family: "courier new" , "courier" , monospace;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUw-gr7mmUON4aXbZgSikFTLhvR5IlZ7-lFs_WQCumSgpSkgd5TNLvpgi5BMc9qfuX5QKx9XuyTQGWmAa6xFLu7ga6E0OSD2CXqcfzKGvoWNYsoYLwIAN_EhdAy8TC69wdPtoeSh7YivUA/s1600/everythinghaschanged.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="314" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUw-gr7mmUON4aXbZgSikFTLhvR5IlZ7-lFs_WQCumSgpSkgd5TNLvpgi5BMc9qfuX5QKx9XuyTQGWmAa6xFLu7ga6E0OSD2CXqcfzKGvoWNYsoYLwIAN_EhdAy8TC69wdPtoeSh7YivUA/s320/everythinghaschanged.JPG" width="320" /></a></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"> <span style="font-size: xx-small;">(photo source unknown)</span></span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Just this weekend, I was looking back at the photos over the past months..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">..made me cry..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">seeing our sweet, sickly little baby..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">in so much pain, suffering and grief..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><br />life spiraling into 3 extended hospital stays..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><br />It's amazing how we were there only a couple of months ago.. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">that hellish week in May when we stopped all steroids </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">- topical and iv -</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">against most every doctor's order and opinion in our lives at the time.. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">..so close to death.. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">as Isaiah was in renal failure by the beginning of August, </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">and only TWO doctors </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">would even consider that we could be right with this </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">"Red Skin Syndrome" </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">thing we were so desperately trying to get them to understand:</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">And now to be HERE on the first of November:</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">The days and nights have been so long and minute by minute it's been hard to see change, </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">but yet when you look back,</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">EVERYTHING has changed.. </span></span><br />
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">We are no longer rocking a</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">"failure to thrive" baby..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">unable to regulate his body temp..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">oozing from every pore in his precious little body..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">or sleeping in the recliner every single night.. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">and we could not be more </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><span style="font-size: large;">THANKFUL</span>..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Thankful to our Lord, first and foremost..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">HE is our LIFE, our HOPE, our JOY and from HIM</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">comes EVERY GOOD THING..</span></span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTi7cEJAWrZK2RfsMENGS3kFIwvtLBccoh7_bOYKsVMub2ko2thghkxtfaH6O-2E3QxGag8dkiUjaegLnKevo2eGITwaqGzbKcrgSEI7XNnhSmnBSVs9Nq4cry1k6luV98wPT7EqYeBdHX/s1600/103_4992.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTi7cEJAWrZK2RfsMENGS3kFIwvtLBccoh7_bOYKsVMub2ko2thghkxtfaH6O-2E3QxGag8dkiUjaegLnKevo2eGITwaqGzbKcrgSEI7XNnhSmnBSVs9Nq4cry1k6luV98wPT7EqYeBdHX/s640/103_4992.JPG" width="640" /></a></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Isaiah is GROWING and LAUGHING and PLAYING so much more these days..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">such a BLESSING.. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">******</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">End of Aug and first part of September was a wonderful month for Isaiah..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">More teeth came in (8 total between Aug/Sept) and his hair really came back in!</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">He was happy and content, more than I had ever seen him, especially since we started this topical steroid withdrawal journey.<br /><br />We have been wrapping his limbs since we left Emory Atlanta and at this point still are. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">(Will update further about that with pics below in this post)<br /><br />A precious local chiro offered her services and we saw her on Sept 13.<br />This was on the way to her office:</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Our other child went to church that Sunday and came home with a cold. By Tues, she was very sick and feverish and I was desperately trying to keep Isaiah away from her, washing my hands and everything in the house like crazy.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Sweet baby kisses are too good to resist for Big Sister though.. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">By that following Thurs, he showed the same signs.. :(</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Every time he has had a fever during the withdrawal, he has developed staph rash. That's why I am quite nutty when it comes to germs.. Have not gone anywhere in months..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"> I assume it is the heat in and on his body and the openness of the lesions that he has had up to those points.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">It must make the bacteria multiply on the skin..?</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">I know that internally, normally, a fever is a great thing.. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">But NOT during TSW for us.. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Anyway, the crazy rash and itch developed on top of the cold, fever, congestion and cough.<br />We waited over a week and it was all lingering, with really no relief in sight for either of our children.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">We decided after speaking with our Ped's nurse that we should bring both of them in to make sure it was not settling in their chests.<br /><br />The next day was Saturday and they had a slot, but we could not see our regular doctor. Was not too pleased about that but definitely concerned about them both, so we took it. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><br />The on call doc decided that Isaiah needed a breathing treatment and after the look on my face and "Oh, no steroids!!" out of my mouth, tried to reassure me that it was non-steroidal and would just open him up to help him breathe. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">I immediately felt on the inside we should not do it, but after the reassurance of the doctor, went ahead.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">I am sure that most regular people would have been fine, </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">BUT with the medicinal allergies in our family, I again, should have gone with my gut.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">This is our sweet man 4 hours later that evening:</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">total adverse reaction to Albuterol.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><br />Full body allergic rash, on top of the staph, cold and everything else.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Absolutely AWFUL..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Screamed and screamed.. looked like the skin was melting off his face within a few hours.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">MISERABLE was an understatement for how he felt and I was having flashbacks from 3 months earlier! </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Awful.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">My sweet, sweet man.... :(</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">I have seriously lost faith in modern medicine.. <br /> </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">The rashes persisted and the itch was unbearable.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">At that point we were still doing Bactroban antibiotic ointment all over mixed with Vaseline - under the wraps as well - but I know he was becoming immune to it and the over-use was not good.</span></span><br />
<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">(<span style="font-family: "courier new" , "courier" , monospace;"><b>2015 Update:</b> The OVERUSE of Bactro<span style="font-family: "courier new" , "courier" , monospace;">ban caused a resistant bacterial infection. Do not overuse antibiotics! Even topical c<span style="font-family: "courier new" , "courier" , monospace;">can cause serious issues!)</span></span></span><br />I really disliked using the Vaseline too..</span></span><br />
<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Petroleum -- yack! </span></span><br />
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Not wanting to have to do an oral antibiotic, but felt at a loss because he really was not comfortable or doing any better,</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">we wanted to get the same one he had at Emory which </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">was Oxacillin - because he did really well on it there. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Tried to get that called in by our doctor but he was not familiar with it, and we then found out it was an IV only type of antibiotic.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">What to do..?</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">I knew that the horrible cold just had to wrap itself up and glad it was not in his chest, but I had to do something with the out of control staph/rash.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">In the beginning of TSW, we used a teaspoon of bleach in the baby bath when the ooze was really bad.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">..So out comes the bleach bottle again..</span></span><br />
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">We decided to stop all other antibiotic ointments,</span><span style="font-size: small;"> </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">and began making cream again for him, </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">as we did in the beginning of TSW.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">(<i><b>2014 UPDATE - we are no longer using bleach! Now Bragg's ACV and Dead Sea Salt!! All natural and much easier on my mind - and his body, I am sure! We have gone all natural with all of Isaiah's treatments now and have had wonderful results </b></i></span></span><br />
<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><i><b>- please see 2014 posts</b></i>.. <b><i> </i></b></span></span><br />
<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><b><i>We also use our Lemongrass and Zinc balms mixed together now under his wraps and all over his whole body.. </i></b></span></span><br />
<b><i><span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Helps so much!</span></span></i></b><br />
<b><i><span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Many in the ITSAN forum and the TSW groups now use our balms too! Our Etsy shop: <a href="http://www.thehomeapothecary.etsy.com/">www.thehomeapothecary.etsy.com</a> </span></span></i></b><br />
<b><i><span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">We also use Sove<span style="font-family: "courier new" , "courier" , monospace;">reign Silver now<span style="font-family: "courier new" , "courier" , monospace;">..</span></span></span></span></i></b><br />
<b><i><span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><span style="font-family: "courier new" , "courier" , monospace;"><span style="font-family: "courier new" , "courier" , monospace;"> </span>Topically and orally for all infections<span style="font-family: "courier new" , "courier" , monospace;">..</span> </span></span></span></i></b><br />
<b><i><span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><span style="font-family: "courier new" , "courier" , monospace;">Isaiah has been <span style="font-family: "courier new" , "courier" , monospace;">Rx med/abx <span style="font-family: "courier new" , "courier" , monospace;">FREE since Jan of 2014!</span></span></span>) </span></span></i></b></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"> </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">After a week and a half passed (a week of 1/2 teaspoons of bleach daily), the rash started to go away and he got more comfortable again. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">It was almost the 15th of October and he started feeling the best he had in weeks.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">I have noticed though, that because of the itch of last month with the rash, he has rubbed a lot of the fuzzy hair off around his hairline and ears. I am sure it will be growing back in soon.<br />His skin is doing incredible - best it's been.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><br />*****</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">(I am not a medical professional so please seek your own medical advise with a supportive Doctor)</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><br /></span></span><span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">This is our daily routine: </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><span style="font-size: x-large;">PRAY</span> </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">(always and about everything - giving thanks to our Lord!)</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">:)</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">3 baths a day (30 min soaks - no soaps yet of any kind):</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">We use this entire bowl of our balms daily with the three baths:</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">We use gauze wraps of two different sizes, smaller width ones for the arms: </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">We cover him head to toe in thick balm and begin wrapping and taping each limb - the wraps stay dry except for the balm on them and have helped SO MUCH with itch throughout the withdrawal..</span></span><br />
<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">the cream keeps them from sticking to any lesions:</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">At this point we are using two trash bags full of wraps every 2.5 weeks. I wish we could use something washable, as it would save us so much money and be far less wasteful afterwards, but have found that the different emollients we have used would tear up our washer and dryer if we even tried.. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">They get coated now with balm and I have to wipe our washer out often, just from his onesies. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">*****</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">As for medications, he takes oral Wal-Dryl daily </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">(we were told by our nurse for his age he could have 2.5 mls but we only give half that each dose) every 6 hours as needed..</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Wal-Dryl is the Walgreens dye-free version of oral Benadryl</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">I have noticed when he rubs and itches his eyes, if I put drops in, he does so much better and it relieves the itch. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Similisan homeopathic drops is what we use and give him 4 to 5 drops in each eye after each bath:</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"> I also read where Vitamin C is a natural antihistamine, and I know it's good to take during this season anyway, so I started high doses daily about 3 weeks ago.. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">he takes 2 tablets daily at bath times (3xs a day), which dissolve in his mouth:</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">He is also on Klaire Labs probiotics two times a day, am and pm - I purchase the capsules, break apart and mix with water to give him in a 5ml dispenser:</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">All of the LOVE, PRAYERS and SUPPORT</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">from you beautiful people has been wonderful.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">So many of you reached out to us with your words of hope and the prayers and cards that have been sent brought tears to my eyes.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">They have been such a breath of fresh air and each and every one of you are appreciated and loved by our family. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">When you look around this world, so much looks broken and unmendable but love transcends even in the darkest seasons and situations. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">I have noticed too, that LIGHT shines the brightest in the </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">pitch black. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">And no matter how dark, God has ALWAYS been right by our side. </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">***</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">We have paid off many of the hospital bills! Another HUGE blessing! </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><br />Thank you for taking the time to visit our blog and share our story with others.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><br />Spreading the word will help save other souls from sinking in the pit of despair as we were only a few months ago.</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Please visit the website</span></span></div>
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<a href="http://www.itsan.org/"><span style="font-size: x-large;"><span style="font-family: "courier new" , "courier" , monospace;">www.ITSAN.org</span></span></a></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">for information on </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Red Skin Syndrome</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Topical Steroid Addiction</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Topical Steroid Withdrawal</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">and </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">Steroid Induced Eczema</span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">also ITSAN also has a fantastic forum now </span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;">please visit it as well:</span></span></div>
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<a href="http://forum.itsan.org/"><span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><span style="font-size: x-large;">forum.itsan.org</span></span></span></a></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><span style="font-size: x-large;">There is HOPE and HEALING!</span></span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><span style="font-size: x-large;">..never give up..</span></span></span></div>
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<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><span style="font-size: x-large;"> <span style="font-size: xx-small;">(photo source unknown)</span></span></span></span><br />
<span style="font-family: "courier new" , "courier" , monospace;"><span style="font-size: small;"><span style="font-size: x-large;"><span style="font-size: xx-small;"><br /><br /><span style="font-size: large;"><a href="http://isaiahquinn.blogspot.com/2014_02_01_archive.html">Next post: 2014 is OUR YEAR of Health and Happiness!</a></span></span></span></span></span></div>
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Unknownnoreply@blogger.comtag:blogger.com,1999:blog-3261723211689270452.post-54345638444352140202013-09-14T12:02:00.000-07:002014-07-24T08:17:48.210-07:00Mr. Itchy and Mr. Scratchy<div class="title entry-title" itemprop="name" style="text-align: center;">
<a href="http://scratchymonster.blogspot.com/2013/07/keira-gives-back-itsans-new-book-taming.html" itemprop="url" rel="bookmark"><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"> </span></span></a></div>
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<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh3V-hCgzz6yHLJca9oIL7LJ1PHg5EQdl8H6ieH1oQwYRhXKatA02oC6kwRM0PMhDq201GlZOKvTswlqkbjbrnIMBmRoN5HbnEODOStQzEKVMorghFY5ZPhB5Dcaqq5Y_MeqdvOYv979MA/s1600/Sad+Scratchy+cutout+with+Trademark.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh3V-hCgzz6yHLJca9oIL7LJ1PHg5EQdl8H6ieH1oQwYRhXKatA02oC6kwRM0PMhDq201GlZOKvTswlqkbjbrnIMBmRoN5HbnEODOStQzEKVMorghFY5ZPhB5Dcaqq5Y_MeqdvOYv979MA/s200/Sad+Scratchy+cutout+with+Trademark.jpg" height="200" width="200" /></a> </span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">My daughter now sings a song as she is helping me </span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">with our daily gauze wrap of Isaiah:</span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><br /></span></span>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggzVIZDYpr3gzRAqwov5JBLHorIZOsdK7hCqy3DDSfBeKNKVykyAzF6pRJt3_KWwF8Hz9ortPf7auW11Tdx-bmiEWSUe9VxGsAUsufKnyDSbP9grgSdLKfl8SThKzkjWkSmdUozbtUDOTq/s1600/note.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggzVIZDYpr3gzRAqwov5JBLHorIZOsdK7hCqy3DDSfBeKNKVykyAzF6pRJt3_KWwF8Hz9ortPf7auW11Tdx-bmiEWSUe9VxGsAUsufKnyDSbP9grgSdLKfl8SThKzkjWkSmdUozbtUDOTq/s1600/note.JPG" /></a></div>
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"> <i>"Itchy Monster, you're not on me! </i></span></span><br />
<i><span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">Itchy Monster, you're not on me!!</span></span></i><br />
<i><span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">Itchy Monster, you're not on meeeeeee!!!</span></span></i><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><i>Never, never, no, never ever! Not on meeee!!"</i> </span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">:) </span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">Isaiah gets a big kick out of that and laughs right along with Sissy now that the itchy guy is on his way out! </span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">******</span></span><br />
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<div class="title entry-title" itemprop="name" style="text-align: center;">
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">There is a wonderful book that was just published called </span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">"<i>Taming the Scratchy Monster</i>" </span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">(where Sissy got the idea for her hit song!) </span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"> </span><span style="font-size: small;"><span class="userContent"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQD9VSJrHO9DLr1GBZQhyIsc0Yoj9Gp2K7EubHET6DMPhgoiH-9i0_TNSHZASMND0mwFbolulLGoWuhJDhng2FqiK1MI0Rq5ivgwBdUW_Th7Qyj0PbFXduweIQYBWscON_JmfHMlKy51I/s1600/book+cover.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQD9VSJrHO9DLr1GBZQhyIsc0Yoj9Gp2K7EubHET6DMPhgoiH-9i0_TNSHZASMND0mwFbolulLGoWuhJDhng2FqiK1MI0Rq5ivgwBdUW_Th7Qyj0PbFXduweIQYBWscON_JmfHMlKy51I/s320/book+cover.jpg" height="320" width="256" /></a></span></span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><br /></span></span>
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<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">It's about a child named Billy who discovers the Monster causing his itchy pain and what it takes to cause him to retreat from his tormenting forever!</span></span></div>
<div style="text-align: center;">
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><br /></span></span></div>
<div class="uiStreamMessage userContentWrapper" data-ft="{"type":1,"tn":"K"}" style="text-align: center;">
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><span style="font-weight: normal;"><span class="messageBody" data-ft="{"type":3}"><span class="userContent"><span class="text_exposed_show">The book was written and
illustrated for The International Topical Steroid Addiction Network - with 100% of the book's proceeds going to ITSAN</span></span></span></span><span style="font-weight: normal;"><span class="messageBody" data-ft="{"type":3}"><span class="userContent"><span class="text_exposed_show">, with the goal of helping more children like Isaiah and the others suffering across the globe.</span></span></span></span></span></span></div>
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<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><br /></span></span></div>
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<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><b><span style="font-weight: normal;"><span class="messageBody" data-ft="{"type":3}"><span class="userContent"><span class="text_exposed_show"><a href="http://itsan.org/">itsan.org</a></span></span></span></span></b></span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><b><span style="font-weight: normal;"><span class="messageBody" data-ft="{"type":3}"><span class="userContent"><span class="text_exposed_show"><a href="http://forum.itsan.org/">forum.itsan.org</a></span></span></span></span></b></span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><b><span style="font-weight: normal;"><span class="messageBody" data-ft="{"type":3}"><span class="userContent"><span class="text_exposed_show"> </span></span></span></span></b></span></span><br />
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<a href="http://www.blogger.com/blogger.g?blogID=3261723211689270452" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhJDFEpKxOb128GG8YUTYNOfj9bg7FAXo_eF-6_soeetPti-TY8GtxiAFV9YDjCyLbzGlP4diCx1q3rV6vQ78BingzAcEHK0y8oDkcaLA3ObY25KmXw41GjhHfnVlicfUZ6Gj9zSCNyccvY/s1600/keirakristina.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhJDFEpKxOb128GG8YUTYNOfj9bg7FAXo_eF-6_soeetPti-TY8GtxiAFV9YDjCyLbzGlP4diCx1q3rV6vQ78BingzAcEHK0y8oDkcaLA3ObY25KmXw41GjhHfnVlicfUZ6Gj9zSCNyccvY/s1600/keirakristina.jpg" /></a></div>
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<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><span style="font-weight: normal;"><span class="messageBody" data-ft="{"type":3}"><span class="userContent"><span class="text_exposed_show"></span></span></span></span></span></span></div>
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<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">This quote is from Kristina Ventura who's daughter, Keira, just came through TSW and has been steroid free for 2 years:</span></span><br />
<br /></div>
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<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">
</span><i><span style="font-size: small; font-weight: normal;"><span class="messageBody" data-ft="{"type":3}"><span class="userContent"><span class="text_exposed_show">"It is a book for parents and children going through topical
steroid addiction/withdrawal and even adults/parents that may want to
explain to their children/other family members what they, themselves are going through. We
hope the book helps children better understand what their skin may go
through and to know that their 'Scratchy
Monster' will eventually leave them alone.</span></span></span></span><span style="font-size: small;"><span style="font-weight: normal;">"</span></span></i></span></div>
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<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><a href="http://scratchymonster.blogspot.com/2013/04/a-new-book-for-children-and-parents.html">Click here for Kristina's blog on the Scratchy Monster book</a></span></span></div>
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"> </span><span style="font-size: small;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgj5SH1dAbWzQhNN4bVj3Xs0-dSu7TuTMy4VOyYFerGJybJiuC9SWA7mp7Rhi13YWAu4dWgG5FgQkN2_uycUvrUc_-6-BmY0NQiA-LBnmVSHLm2DiWY7gJ91Gmt-iI_Qhv8p0ndVkvm4I0/s640/itchy+boy+in+bed+next+to+monster.jpg" height="362" width="640" /></span></span><br />
<br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">The book is so well written and beautifully illustrated with the most vivid colors! It is truly a pleasure to read (especially the ending and fate of that scratchy monster!). </span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">Isaiah, as small as he is, looked at every single page with his sister when she read it to him.</span></span><br />
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<span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjUWJHBndNRXwjwYWf3YMNHWiQYgE-yrXrj4piKjgek0fy1NPj4-DwSZ3v_VKLlfcDXxymKvSxkzTaG0MV6RO9SCqtbHcYbzpJyuOc52CWiH8CbOdDEXP9lJASwytBdaxhB5gH-KC3KZqWm/s1600/103_4044.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjUWJHBndNRXwjwYWf3YMNHWiQYgE-yrXrj4piKjgek0fy1NPj4-DwSZ3v_VKLlfcDXxymKvSxkzTaG0MV6RO9SCqtbHcYbzpJyuOc52CWiH8CbOdDEXP9lJASwytBdaxhB5gH-KC3KZqWm/s320/103_4044.JPG" height="201" width="320" /></a></span></div>
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<span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi1qFW5vxh1IoioIDk4rQNC3jah1GYEOjOTs4qBlBLz3Tkt2betB4CGttvyzqFCNIwcJ-RUWt9dEIITXGz9eWTpbjvciv7maxnqWe55lnXTZLTADQVfZPzbzv-1FILmYP5JmwyZfVFf2Yz4/s1600/103_4040.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi1qFW5vxh1IoioIDk4rQNC3jah1GYEOjOTs4qBlBLz3Tkt2betB4CGttvyzqFCNIwcJ-RUWt9dEIITXGz9eWTpbjvciv7maxnqWe55lnXTZLTADQVfZPzbzv-1FILmYP5JmwyZfVFf2Yz4/s320/103_4040.JPG" height="320" width="267" /></a></span></div>
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<span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhrfJb2mbiPUZ1ROrEzvQocglhol2cCEH1srj3u5qDUvK2VGiHZkg0XaTUQ1VFxI2S3KwlPJAwTw0ETmfUU7y_dChu3iYSUfSnr49v1aGt96udF_dITRNjwwyIyqB2uTD3jdvvC3m9YlajE/s1600/103_4035.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhrfJb2mbiPUZ1ROrEzvQocglhol2cCEH1srj3u5qDUvK2VGiHZkg0XaTUQ1VFxI2S3KwlPJAwTw0ETmfUU7y_dChu3iYSUfSnr49v1aGt96udF_dITRNjwwyIyqB2uTD3jdvvC3m9YlajE/s320/103_4035.JPG" height="320" width="263" /></a></span></div>
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<span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj68mV8YHvQYRurjOpiPN5KVaEjhaF4SZJnRCC-ZYFwIAV_zxrtdcBrrpe1-5cBUQyvDbAhN9yT4eWJLHEAxdxzoIDE41t9Q0B2dtlX4g-NU_wTN-HgD3_Fmm4AUVbs9UnhFUNLyqbcjiBf/s1600/103_40321.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj68mV8YHvQYRurjOpiPN5KVaEjhaF4SZJnRCC-ZYFwIAV_zxrtdcBrrpe1-5cBUQyvDbAhN9yT4eWJLHEAxdxzoIDE41t9Q0B2dtlX4g-NU_wTN-HgD3_Fmm4AUVbs9UnhFUNLyqbcjiBf/s320/103_40321.jpg" height="201" width="320" /></a></span></div>
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<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"> On a funny note, just this week we ordered Isaiah two packs of onesies to replace some of his that are Vaseline dingy and this one came with it:</span></span></div>
<span style="font-family: Verdana,sans-serif;"><br /></span>
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<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicjHWZeSoqwqCOc6jBMFSFbuNC2T9V4oXY3VRcvrKYMZFjaHIo85jmTQ_HwBsrGf-BMZz7UHJyvfX14OIpIf4RfD9AF7K8xCK430C9LG5yzKAiH550B4Il1v0-kRSnHbkHws9EoPc06U9p/s1600/103_4053.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicjHWZeSoqwqCOc6jBMFSFbuNC2T9V4oXY3VRcvrKYMZFjaHIo85jmTQ_HwBsrGf-BMZz7UHJyvfX14OIpIf4RfD9AF7K8xCK430C9LG5yzKAiH550B4Il1v0-kRSnHbkHws9EoPc06U9p/s320/103_4053.JPG" height="320" width="267" /></a></span></span></div>
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">Sissy said this little booger has got to be the Scratchy Monster's cousin "Itchy" and Isaiah will NOT be wearing him!</span></span><br />
<br />
<a href="http://www.blogger.com/blogger.g?blogID=3261723211689270452" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"></a><span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9AMhnm918TSOmSoZQbdIHWtdc9FopjANeSC3H52GMQLyqlZesGDeZSTJKeC7CG35Qe7rpEnYME8AVeXdFuyPESZUk1jY9OSfBkjgwqVc2qIrsJKonb3hK_rOC91QGGLQnxv0kakphHrgj/s1600/103_4054.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9AMhnm918TSOmSoZQbdIHWtdc9FopjANeSC3H52GMQLyqlZesGDeZSTJKeC7CG35Qe7rpEnYME8AVeXdFuyPESZUk1jY9OSfBkjgwqVc2qIrsJKonb3hK_rOC91QGGLQnxv0kakphHrgj/s320/103_4054.JPG" height="226" width="320" /></a></span></span><br />
<a href="http://www.blogger.com/blogger.g?blogID=3261723211689270452" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"></a><span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><br />I definitely see the resemblance and agree!!</span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"> </span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">********</span></span><br />
<a href="http://www.blogger.com/blogger.g?blogID=3261723211689270452" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"></a><a href="http://www.blogger.com/blogger.g?blogID=3261723211689270452" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"></a><a href="http://www.blogger.com/blogger.g?blogID=3261723211689270452" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"></a><a href="http://www.blogger.com/blogger.g?blogID=3261723211689270452" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"></a><a href="http://www.blogger.com/blogger.g?blogID=3261723211689270452" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"></a><a href="http://www.blogger.com/blogger.g?blogID=3261723211689270452" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"></a><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">Kristina is such a beautiful person and I am so thankful to get to know her through this journey of TSW. She is so pro-active when it comes to Topical Steroid Withdrawal / Red Skin Syndrome because of the torment Keira experienced. She actually just raised some serious awareness when she took our story and pics as well as many others for a meeting with a leader in the national eczema arena. </span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><b>We are all so grateful to her for that!</b> </span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">This is the only way to give this very serious side effect a voice, show those that are suffering with 'severe full body eczema' that most likely that is <u>not</u> the case (!!!) and demand labeling from the FDA.</span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">When we were at Emory in Atlanta in late July, I read every single page on Kristina's blog. The Ventura's TSW story ending is a wonderful one of victory, but the beginning is heartbreaking, as was ours, and so many others who are in the withdrawal process.<br />(If you are new here, here is the link to the first blog page of our story:<br /><a href="http://isaiahquinn.blogspot.com/2013_08_01_archive.html">http://isaiahquinn.blogspot.com/2013_08_01_archive.html</a>) </span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">This is an actual quote from Kristina's blog, as I can SO RELATE with our own journey with Isaiah when we were sinking in the unknown before finding out about TSW, as she was here:</span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><br /></span></span>
<i><span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">"Out went anything that could possibly be an allergy trigger - said
good-bye to our dog, changed bedding to organic chemical
free bedding - cleaned house top to bottom with chemical free vinegar to
remove mold, chemical residues, etc, dust mite proofed everything!,
tried NAET, acupuncture, and allergy sub-lingual drops. We even joked
(though not really joking) about cutting down the neighbor's highly
allergenic trees across the street. We were desperate. We did about
everything but put our daughter in a plastic bubble, though that was
tempting at times. I started keeping food logs and dairies of where we
went during the day - the weather, what we touched, what we looked at - I
was becoming so paranoid of what was triggering my daughter's skin day
to day and if that related in any way to a bad night or a good night -
there was no pattern to the madness.
In early 2011, we moved in with my parents desperate for support. We
were sleep deprived, exhausted and no longer knew how to cope with our
daughter's unbearable itching and long traumatic nights. In the summer
of 2011 we decided to leave Contra Costa County and the house we
purchased the summer before, thinking it was the house and local pollens she was allergic to." </span></span></i><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">I have to say, we did not leave our home, although I know exactly the thought process it took for this precious family to do that.<br /> </span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">Below is another link to her blog on a page titled<br />"<i>A Mother's Wish</i>"<br />where she posted a poem she had written on the NEA's (National Eczema Association) FB page when their family was still drifting in the misery of the unknown before the same precious angel, Joey, that we found, found her.</span></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><br />(There are also pics of other children in the process of Topical Steroid Withdrawal on the same page that are mind blowing.)<br /><br /><b><a href="http://scratchymonster.blogspot.com/2013/04/a-story-of-my-daughters-scratchy.html">Click here for "A Mother's Wish"</a></b></span></span></div>
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<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">All that is written below in italics is from Kristina's blog and it describes her role, as well as the others that participated in this awesome project.<br />Please visit her blog as well as ITSAN.org and prayerfully consider donating to help those find hope! </span></span><br />
<span style="font-size: small;"><span style="font-family: Verdana,sans-serif;">(and also, be able to get a wonderful children's book for a donation of $35 or more in the process!)</span></span></div>
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<i><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Keira Gives Back -- ITSAN's new book, 'Taming the Scratchy Monster' now available.</span></span></i><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">
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<i><span class="userContent">I am proud to say that my daughter, Keira is
giving back to the organization that helped save her skin, ITSAN,
helping create a book based on her little monster who once terrorized
our family. The children's book, 'Taming the Scratchy Monster' book has
been published and is now available to order through <a href="http://itsan.org/Children_s_Book.html">http://itsan.org/Children_s_Book.html</a> </span></i></span></span><br />
<a href="http://www.blogger.com/blogger.g?blogID=3261723211689270452" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"></a><a href="http://www.blogger.com/blogger.g?blogID=3261723211689270452" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"></a><a href="http://www.blogger.com/blogger.g?blogID=3261723211689270452" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"></a><i><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">
</span></span></i>
<i><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">
<span class="userContent">A year in the making, it is a beautifully illustrated
book for children and parents who are going through the topical steroid withdrawal process -- written
by a dear friend of mine, fellow Red Skin warrior and brilliant author, Louise Jones. Louise did a wonderful job of </span><span class="userContent">capturing
the withdrawal journey in such an engaging story about a young boy and
annoying monster--a story line that is perfect for kids (and adults) of
all ages going through topical steroid withdrawal. </span><span class="userContent">I think anyone who is going through TSW can appreciate the story and nuisance of 'Scratchy Monster'. My
daughter, Keira and I came up with the concept of and character
'Scratchy Monster' during my daughter's painful
withdrawal two years ago, a nuisance of a monster who once terrorized
our family. </span></span></span></i><br />
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</span></span></i>
<i><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">
<span class="userContent">Having both experienced topical steroid addiction and
withdrawal, Louise and I teamed up to<span style="font-weight: normal;">
bring the 'Scratchy Monster' alive in a book that could help others
who are still suffering. </span><span style="font-weight: normal;">I
found a lovely illustrator in Spain who was willing to work with me on
illustrating the scenes of Louise's storyline using Keira's Scratchy
Monster character. The book came together from all the hard work and
dedication from three different countries, so it is an international
book just like ITSAN :) </span></span></span></span></i><br />
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</span></span></i>
<i><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">
<span class="userContent"><span style="font-weight: normal;">Louise's
skin is almost healed and my
daughter, Keira fully healed last year from topical steroid addiction.
She is now living life like a 5 -year-old should be, no longer a
prisoner in
her own skin.</span> The
story is based on Louise's and Keira's long and trying, and yet successful journey towards
healing. In the story, the protagonist, Billy, endures many harsh
conditions including a dry desert, an oozy swamp and a hot volcano in
his efforts to escape the 'scratchy monster'. These conditions mirror
the stages the skin may go through during the withdrawal process.</span></span></span></i><br />
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</span></span></i>
<i><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">
<span class="userContent"><span class="text_exposed_show">Steroid-induced eczema, also known as Red Skin Syndrome or topical
steroid addiction, is a side effect of topical steroid creams -- a
condition in which the body becomes dependent on topical steroid creams
requiring stronger and stronger creams to obtain relief. The withdrawal
process is a very painful one, but was necessary in order for my daughter to heal. <a href="http://itsan.org/eczema_questions_answered.html" rel="nofollow nofollow" target="_blank">http://itsan.org/eczema_questions_answered.html</a></span></span></span></span></i><br />
<i><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><span class="userContent"><span class="text_exposed_show"> </span></span></span></span></i></div>
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<i><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><span class="userContent"><span class="text_exposed_show">
ITSAN (International Topical Steroid Addiction Network) is giving the
book away with a minimum donation of $35.00. 100% of the proceeds from
this book goes to ITSAN.org to help children like Keira, and
sufferers around the world. Louise and I wanted to give back to an
organization that has changed our lives forever as well as help those
who are still suffering from this painful condition. </span></span></span></span></i></div>
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<i><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><span class="userContent"><span class="text_exposed_show"> </span></span></span></span></i></div>
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<i><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><span class="userContent"><span class="text_exposed_show"> </span></span><span class="userContent"><span class="text_exposed_show">Thank
you Kelly Palace
for starting an organization that is making a difference in the world;
an organization that is saving so many people from this skin nightmare,
illuminating what has been a very dark and lonely path -- Thank you for
allowing Louise and I this opportunity. ITSAN is making a difference in
so many people's lives around the world. </span></span></span></span></i></div>
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<i><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">
<span class="userContent"><span class="text_exposed_show">And thank you
Louise for your brilliant writing skills! You are a talented author and
your wonderful story will help so many parents and children who are
still suffering. </span></span></span></span></i></div>
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<i><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">
Please share this
post with family and friends who may want to help support this cause or
would like to have a better understanding of topical steroid withdrawal.
Feel free to share this post on your blogs, forums, and other websites
you come across to help get the word out and help raise awareness about
topical steroid addiction.</span></span></i></div>
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</span></span></i></div>
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<i><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">
Please go to Itsan.org under the tab,'children's book' and donate today to get a copy of the book.</span></span></i></div>
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<i><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">
<span class="userContent"><span class="text_exposed_show">With much love and admiration to all of you still battling the
'Scratchy Monster', never give up or lose faith that one day you will
(as my daughter likes to say) 'kick Scratchy Monster in the booty' for
good as my daughter did.</span></span></span></span></i></div>
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<tr><td style="text-align: center;"><i><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZmm1Fm11gHL5aIX_Kqnfs4_R-sr4vaF9ShHwmclbhwgFfvlvqxTlsuBBwz6F7X9xwG07-ZPe37EHBxZd5G4IZH4oaaKsx2ZVfZGPvA53CXmyTMt_DYq04id-fbrgAhrIs8eR_pSyzBSY/s1600/IMG_5736.JPG" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZmm1Fm11gHL5aIX_Kqnfs4_R-sr4vaF9ShHwmclbhwgFfvlvqxTlsuBBwz6F7X9xwG07-ZPe37EHBxZd5G4IZH4oaaKsx2ZVfZGPvA53CXmyTMt_DYq04id-fbrgAhrIs8eR_pSyzBSY/s400/IMG_5736.JPG" height="400" width="223" /></a> </span></span></i><br />
<i><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Keira holding the very first copy</span></span></i><br />
<i><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">of the book hot off the presses!</span></span></i></td></tr>
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<i><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg0DiGGXx7I519Gz27wYIRVRFI-VZIELc9lQVGUvIq4Oi25ci-1zLpJaX_6BdNafZYojB-G-jbhUsIjtrLobN04fuRYbS-Ub2BsGV7SqVsVoLpdYy2-3R2DZnNoRIAjbSNllAYYgmQy7jc/s1600/Louise+holding+SM+book.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg0DiGGXx7I519Gz27wYIRVRFI-VZIELc9lQVGUvIq4Oi25ci-1zLpJaX_6BdNafZYojB-G-jbhUsIjtrLobN04fuRYbS-Ub2BsGV7SqVsVoLpdYy2-3R2DZnNoRIAjbSNllAYYgmQy7jc/s400/Louise+holding+SM+book.JPG" height="225" width="400" /></a></span></span></i></div>
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<span class="userContent"><span class="text_exposed_show"> </span></span>Louise Jones, Author of 'Taming the Scratchy Monster', holding her first copy of the book! </span></span></i></div>
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</span><br /><span style="font-size: small;">
<span class="userContent"><span class="text_exposed_show">For more on Louise Jones' story of withdrawal, please go to Louise's blog: <a href="http://topicalsteroidwithdrawal.blogspot.com/" target="_blank">http://<wbr></wbr>topicalsteroidwithdrawal.<wbr></wbr>blogspot.com/</a></span></span></span></span></i></div>
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<span style="font-size: large;"><a href="http://isaiahquinn.blogspot.com/2013_11_01_archive.html"><span style="font-family: "Courier New",Courier,monospace;">Next blog post: Healing is Happening</span></a></span><span class="userContent"><span class="text_exposed_show"><span style="font-size: large;"><span style="font-family: "Courier New",Courier,monospace;"></span></span><br /></span></span></div>
Unknownnoreply@blogger.comtag:blogger.com,1999:blog-3261723211689270452.post-16529738809618565142013-09-02T07:40:00.002-07:002014-03-02T10:30:16.568-08:00Off to Emory Atlanta..<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">When we got home from the hospital stay the first week of July, Isaiah developed a fever our first night at home.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He
received a half bag of albumin right as we were leaving the hospital
that Saturday.. would have been a full bag, but they lost the vein in
his head. Rather than he being stuck again, when they were planning to
release us anyway later that day, our ped said that a half bag would
suffice. He had already received 3 others during that same stay.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The
fever crept up to 102 by Sunday morning but into the am hours of
Monday, had climbed up to 104.2. His little body was burning up that
night and I was extremely worried. </span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">Here we were again, had just left the hospital, showing up at the ped's office straight after. </span></span></div>
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<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">During
the night with the fever, he developed this pimply rash on his chest
and back.. started on his shoulders but within 3 days it covered him and
he itched like he had never itched up to this point. His skin was super red again.</span></span><br />
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<br />
<span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;">All that worried me
even more. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I did not know what was causing it.. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">..was this something he caught from the hospital?</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">It was a different kind of miserable for him.</span></span></div>
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<br /></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Where he was at least finding peace in the baby bath before, it seemed to start making him very uncomfortable. He would barely stay for 5 minutes, where he used to soak and sleep for at least 30.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The rash continued to cover him and he stopped eating again. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He itched day and night and it was uncontrollable.</span></span></div>
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<br /></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">As always, up to this point, his albumin was dropping.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He was barely urinating and having bouts of diarrhea again.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We saw our ped multiple times weekly for 2 weeks until we sat down in front of him on July 23 and he told us he was trying to make us an appointment with a GI doctor from Emory Hospital in Atlanta. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We had exhausted our local hospital and resources and our ped wanted Isaiah scoped to see his gut function. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">At almost 8 months old he would only eat 2.5oz servings of formula and at a max only ate 4oz.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The few 4oz feedings were only eaten a handful of times.</span></span></div>
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<br /></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">we were in agreement that more extensive testing should be done.</span></span></div>
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<br /></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We knew his little body was on the verge of shutting down again and time was running out to wait for an appointment. </span></span></div>
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<br /></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He practically stopped eating altogether and we made a decision to go ahead and drive to Atlanta since it was a 4 hour drive, to stay in a hotel for the night.. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">After our pediatrician spoke to one of the GI doctors, the plan was to go in through the ER in Scottish Rite/Emory Children's Hospital that following morning. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">That night after the drive was one I will never forget. Isaiah was in such pain and had lost so much weight, he looked like a skeleton. The rash was still all over his body after all those weeks and the itch was consuming him. He cried and moaned in misery but again, no tears - too dehydrated.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">This was a picture we took of him at the hotel that night.</span></span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhrVlI3z4Ns_N99vZWAXh2YJNKlgxwR5tEwPoKXRT2shoCf2LCrxrvbUsTiP-aJLl4wPoyZGxk8mY2ThMyCHuS9S8tesPkk8DV9ONgUrwY8iydJ-4FKnwfNBTcxi7qr4usaOh8MGQWr8n6S/s1600/2013-07-24_21-42-09_814.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhrVlI3z4Ns_N99vZWAXh2YJNKlgxwR5tEwPoKXRT2shoCf2LCrxrvbUsTiP-aJLl4wPoyZGxk8mY2ThMyCHuS9S8tesPkk8DV9ONgUrwY8iydJ-4FKnwfNBTcxi7qr4usaOh8MGQWr8n6S/s320/2013-07-24_21-42-09_814.jpg" height="320" width="180" /></a></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We barely had 30 minutes of sleep that and we were at the ER at 7am.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I rarely get sick but that night I had a low grade fever and an awful cold on top of it all. I could barely get a sentence out without blowing my nose.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">When we went in, many people were trying to ask us what was going on with him, his skin, why we were there 4 hours away from home, coming in thru the ER, etc. etc..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Had to hash out 5 months of pain and suffering, as I blew my way through kleenex boxes..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">When was the nightmare going to end....?</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">They drew blood and immediately admitted him into Ped ICU..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He was much worse than we knew.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Before we ever left our town, we had our peditrician put in Isaiah's file that ALL steriods were an ALLERGY.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Thank God he did that.. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">as crazy as it sounded to everyone we were in contact with at Emory.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The many doctors in Atlanta that we saw in the ER and the GI doctors that came in, smirked and looked puzzled when reading that and we had to explain and explain over and over again.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">No one seemed to believe us, but many commented among each other that our ped in Savannah was in agreement with what we were saying and they looked puzzled about that as well.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">In the ER, they still put a little red allergy band on his wrist that said 'steroids'. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Isaiah was in renal failure and his body was shutting down like never before up to that point.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The PICU Doctor said,</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">"I know his skin looks awful and he is uncomfortable with that, but I am solely focusing on his internal organs at this point, as he is in worse shape on the inside.."</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">She was so thorough and listened to everything we said.. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">she was curious about his skin and what we had to say about TSW/RSS..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">They stuck him every 4 hours for almost 32 hours and then decided to do a picc line - which he had to go into surgery for but ended up so much better for him. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">They drew all blood from it and gave all meds through it </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">-- pain free.. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I was so glad for that.. </span></span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvqdnxG59gLVmHaVmPEPFEkamYukw4rKWfab070DI0lBQwi9NengJ7dy7E4SpMyWk6L4xiod1WY6nJ_BGFK0tpbyapmvoDv82sfubcA5yJCkt0rJCor4oQjy2QEcmImY19l2SrI2q9jDod/s1600/2013-07-28_11-05-56_164.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvqdnxG59gLVmHaVmPEPFEkamYukw4rKWfab070DI0lBQwi9NengJ7dy7E4SpMyWk6L4xiod1WY6nJ_BGFK0tpbyapmvoDv82sfubcA5yJCkt0rJCor4oQjy2QEcmImY19l2SrI2q9jDod/s320/2013-07-28_11-05-56_164.jpg" height="320" width="180" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjskODFnpyOSWN_iVgBnZQOe9-WLvCUuxBcw0Crrq7nvtqI6IVVOaKXTRgHFIiMzk9jRJrjsbpX-F_h3-hxp56UDwVzcSx_BeTqbn-LvgYzDCRzOhyphenhyphen0vwdAijE5_25Yo4OFqRbmeZ-FLcCH/s1600/2013-07-28_11-06-36_910.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"> .. once he started receiving the vitamin bags, lipids and iv antibiotic he semi-stabilized, the PICU doctor wanted to look through my phone at all the pictures we had taken up to that point. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I even pulled up Joey's blog and she saw pictures of other kids that looked like Isaiah.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"> </span></span><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjskODFnpyOSWN_iVgBnZQOe9-WLvCUuxBcw0Crrq7nvtqI6IVVOaKXTRgHFIiMzk9jRJrjsbpX-F_h3-hxp56UDwVzcSx_BeTqbn-LvgYzDCRzOhyphenhyphen0vwdAijE5_25Yo4OFqRbmeZ-FLcCH/s1600/2013-07-28_11-06-36_910.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjskODFnpyOSWN_iVgBnZQOe9-WLvCUuxBcw0Crrq7nvtqI6IVVOaKXTRgHFIiMzk9jRJrjsbpX-F_h3-hxp56UDwVzcSx_BeTqbn-LvgYzDCRzOhyphenhyphen0vwdAijE5_25Yo4OFqRbmeZ-FLcCH/s320/2013-07-28_11-06-36_910.jpg" height="320" width="180" /></a></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We had to tell multiple doctors, over and over again during that 10 day stay that we were NOT, under ANY circumstances using steroids of ANY kind.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">None of the doctors or nurses had ever heard of Topical Steroid Withdrawal or Red Skin Syndrome although they said they had treated kids there in that hospital with skin that looked worse than our sons..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Treatment for those other children? </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">IV steroids and topical steroids..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Wonder how many of those kids are still out there with "full bodied severe eczema" and are slathering on the steroid creams..? </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We saw a dermatologist as well as an allergist the first day in PICU.</span></span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgb1cGIryeqKDa4h9fv6_11gPGwOJ4kNTu9lp-pD1fak9yg9FWuQShGt5RCA027fo-6NpFL3stuJ5ruZByaJY-r6rxZBloLQaDfoAvudjU0lMl7-OjssKX2z9KhA0yalHOMga4LMtE8nxS_/s1600/2013-07-269519-54-3895519.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgb1cGIryeqKDa4h9fv6_11gPGwOJ4kNTu9lp-pD1fak9yg9FWuQShGt5RCA027fo-6NpFL3stuJ5ruZByaJY-r6rxZBloLQaDfoAvudjU0lMl7-OjssKX2z9KhA0yalHOMga4LMtE8nxS_/s320/2013-07-269519-54-3895519.jpg" height="180" width="320" /></a></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The derm didnt say much but discussed how he thought our son might have a disease called 'Netherton's syndrome' and he wanted to take a skin biopsy as well as a hair sample because people with that syndrome have 'bamboo hair'..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We knew he did not have that and everything and every disease that was mentioned, we rebuked it and placed the name of it in my Bible under the scripture that says,</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">"No weapon formed against you shall prosper and every tongue that rises against you in judgement, you shall condemn."</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We agreed to the biopsy on his tummy and for his first haircut to be given by the derm. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"></span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The allergist then walked through the door - super nice guy - but he did everything he possibly could to convince us to use steroids. He looked at our son and told us that he WOULD NEVER improve without steroids. I looked at him in his face and said, </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">"That is NOT the God I serve.."</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He thought I was crazy.. :)</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">It turned into an hour+ long conversation of my husband and I saying, "No, No, No, No, No we will not use steroids of any kind.. NO!"</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">After we adamantly refused no matter what he said, he then asked if we would use immunosuppressants. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">"No! We will not use those either.."</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He then said, "You both have tied my hands.."</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">"Good thing!" I said, </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">and my husband agreed..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Too bad we could not tie his lips and tongue as well.. :)</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We did agree to antibiotic ointment and said we would try wetwraps for the first time ever.</span></span></div>
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<br /></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The PICU doctor took swabs of the ooze on his limbs and they came back positive for staph.</span></span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiEpsRTALPQFgKBvqR5522uNJ7Udoz1L9xMdM4CavTvMY6FcQztpIdJrLz0Pj4ywiizLOW4SaJnMnwlkAoIMGRxACoLBrJy0ADOoTMVBJ9NcvPP_aU6wR6tirm7JHq0dGLiclXuWvpjB_po/s1600/2013-07-30_22-12-29_860.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiEpsRTALPQFgKBvqR5522uNJ7Udoz1L9xMdM4CavTvMY6FcQztpIdJrLz0Pj4ywiizLOW4SaJnMnwlkAoIMGRxACoLBrJy0ADOoTMVBJ9NcvPP_aU6wR6tirm7JHq0dGLiclXuWvpjB_po/s320/2013-07-30_22-12-29_860.jpg" height="180" width="320" /></a></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The itchy bumps that he had for the month of July started to clear and he seemed to do well with the antibiotic and antibiotic ointment. Tried the wetwraps for a night and his temp dropped way too low. We decided to use dry gauze wraps with tape instead with bactroban mixed with vaseline and that worked well. </span></span></div>
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<br /></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The severe itching ceased for the most part. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Praise God!</span></span></div>
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<br /></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">His kidney function regulated as well as his sodium and potassium. Praise the Lord! </span></span></div>
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<br /></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">His skin started to clear to the allergist's surprise and he finally quit bugging us about the steroids after a few days. I think people finally realized how serious we were about not using them, everyone seemed to back off as his health was improving so much. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He received albumin and lasix and more lipids and vitamins.</span></span></div>
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<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He looked so lively and seemed to be doing so much better.. </span></span></div>
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<br /></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">They sent us to a regular room and we stayed for 6 more days.. continuing the lipids and vitamins which is what his little body needed so badly.</span></span></div>
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<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We were so glad things seemed to really be turning around for the better! He laughed and smiled over and over again for the first time in MONTHS! </span></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi2Q5SApJnmyigREjaGqwzqPLwsKVvPre-AY28UZojyiBNDH5ge8M8yNnZrmCIcmgbqS5FoSLxgPxss-wLKQ-mhJc7peeIg0I87Fk7Sp6eg5tlh7QfgFm11d0N9aHzDKzQdOmr1JsbFb-R5/s1600/isaiahhospital1.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi2Q5SApJnmyigREjaGqwzqPLwsKVvPre-AY28UZojyiBNDH5ge8M8yNnZrmCIcmgbqS5FoSLxgPxss-wLKQ-mhJc7peeIg0I87Fk7Sp6eg5tlh7QfgFm11d0N9aHzDKzQdOmr1JsbFb-R5/s320/isaiahhospital1.jpg" height="320" width="320" /></a></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"></span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We were ready to go home as Isaiah had been off the IV bags for 3 days. We talked to the pediatrician and he agreed that we could head home. We only had to meet with the GI doctors and hope they would agree.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Eh..</span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">they were not as willing.. </span></span></div>
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<br /></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">They wanted to see Isaiah gain more weight before we left so they were refusing to let us leave. </span></span></div>
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<br /></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">That was not what we wanted to hear.</span></span></div>
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<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We told them we were the ones who drove all the way to Atlanta for Isaiah and we would not want to leave if we did not feel he was in a comfortable place to leave.. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We had been down this road many times.. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We had a release on the inside to head home and everyone else except the GI docs were in agreement, but again, it was only for the weight gain, and we knew we could work on that from home. </span></span></div>
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<br /></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We were away from our daughter for the first time ever and had actually missed her birthday. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We have never done that and my heart was broken because of it.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I was so ready to get home to see her and was so relieved that Isaiah was doing so well. We had all had our fair share of hospital stays.. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We were feeling led to go home and promised them that we would follow up with our ped the very next day. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We were going on our 11th day and on top of it all, knew our stay was getting expensive.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiJCVpd7t3ERh5mpt1_2qnJ_HZkyZaoqEMBJy5SqnySrCDwj9c_ZSZhbDpX3V_5zRQkPLRuBCO6VvRy2yadTQqIaHRm42o5aqMDZgoWE9SqG62V__IkIyUjFeieVRH0DwgtPtkLmzgjXfLS/s1600/2013-07-30_22-05-08_415.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiJCVpd7t3ERh5mpt1_2qnJ_HZkyZaoqEMBJy5SqnySrCDwj9c_ZSZhbDpX3V_5zRQkPLRuBCO6VvRy2yadTQqIaHRm42o5aqMDZgoWE9SqG62V__IkIyUjFeieVRH0DwgtPtkLmzgjXfLS/s320/2013-07-30_22-05-08_415.jpg" height="180" width="320" /></a></span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The GI doctors were still refusing..</span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I was discouraged and tired and the tears started to fall..</span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I was watching Kenneth Copeland's grandson on TBN talk about patience.. of all things, that had to be the topic that day.. :)</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I told the Lord I would do whatever He wanted us to do. If they came back in and still refused, I knew it was His will for us to stay and I would submit to that gladly.</span></span></div>
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<br /></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I was standing at the crib as Isaiah and my husband were both sleeping and the room door opened after a light tap.</span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I thought it was the GI doctors again..</span></span></div>
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<br /></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">There was a woman who walked over to the crib and said,</span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">"Prophet Isaiah.."</span></span></div>
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<br /></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I looked up at her, tears still in my eyes and I thought to myself, "What did she just say..?"</span></span></div>
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<br /></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">She continued..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">"What's your declaration, Man of God? ..</span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">By His stripes, you are healed..?"</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">My heart jumped.. I did hear her right..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Thank You, Lord for sending this angel in our room right when I needed her!</span></span></div>
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<br /></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">She was our cleaning lady for the day shift and had read his name on the door as she walked in..</span></span></div>
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<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I could not even speak.. I just pointed to the scriptures I had posted on the head and foot of his bed.. </span></span></div>
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<br /></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">She smiled and looked a bit surprised at them.. </span></span></div>
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<br /></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">She started quoting more scripture and I wiped tears and began finishing her sentences..</span></span></div>
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<br /></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I then told her briefly the season we had been in and how we were 4 hours away from home, hoping this was the last of the hospital stays. She said she was not even supposed to be on our floor that day, but last minute, filled in for someone else. I told her she could stay all day! She agreed that she wished she could.. :)</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">As we chatted, I told her how I had prayed for the healing ministry for our children and how here we were, 3 hospital stays later..</span></span></div>
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<span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhguMZB8EvBzV12PH8yaBTAnmly_9_Vgd0QwoAbvpQED9ZCSd5GIlt-h9P1YoHi2msdHda0mfPWYmU3qQIyXuDs3CQw3v1dOd3mmGmuk3_8-MzAg7jTQFBTzWU3gWRKn7uqSPdEOUmttxNn/s1600/2013-07-30_22-04-44_800.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhguMZB8EvBzV12PH8yaBTAnmly_9_Vgd0QwoAbvpQED9ZCSd5GIlt-h9P1YoHi2msdHda0mfPWYmU3qQIyXuDs3CQw3v1dOd3mmGmuk3_8-MzAg7jTQFBTzWU3gWRKn7uqSPdEOUmttxNn/s320/2013-07-30_22-04-44_800.jpg" height="180" width="320" /></a></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">She said, "Oh, you will have that healing ministry.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">you, your husband and your children.. </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">how else would you be able to relate to those sick and suffering, unless you had been here, right where you are.."</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">She was so right..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">..more tears fell..</span></span></div>
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<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We had the best conversation for the next 30 mins about the Lord and His goodness, as she, in her helps ministry, served us by cleaning up our floor, our son's bandages, our trash and refilled all of our supplies..</span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">She not only refilled those plastic gloves and paper towels, she was helping refill my soul.. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">xoxo </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">...........</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">They tested Isaiah extensively while we were there: </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">blood
tests, stool and urine tests, many multiple different gut tests to see
if there was inflammation/leaky gut/etc and to see if he was losing
albumin through stool/urine.. immunology and lymph tests and every other
test they could think of for all these rare, crazy diseases were also
completed. </span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><u><b>EVERY SINGLE TEST CAME BACK PERFECTLY NORMAL!</b></u></span></span></div>
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<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"> Because of the gut tests being normal, they decided not to scope.</span></span></div>
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<br /></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We were thrilled! </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Rejoicing.. Praising the Lord!</span></span></div>
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<br /></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We
knew then, after every other possible disease and syndrome was ruled
out that Isaiah was definitely in TSW and we were well on our way to
healing as we would soon be stepping into our 3rd month steroid free!</span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"> </span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">They finally agreed for release and we were on our way home..</span></span></div>
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<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">As we were on our way out of the hospital, we stopped at the gift shop and purchased this canvas for Isaiah.</span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I love it..</span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh13asYGZCLIR_mBucBc0RABmcyiAOi57hE3YY33glxZkj2cJ55XCTrXw0B9Rg2D7ER95ZBgynAqQDBV4DgTIqpx4sAPOsIE-K0W-DWASK_5Qg0TyAcYab9FSgqnGuoJs4Uy86MT13Txrqi/s1600/103_3391.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh13asYGZCLIR_mBucBc0RABmcyiAOi57hE3YY33glxZkj2cJ55XCTrXw0B9Rg2D7ER95ZBgynAqQDBV4DgTIqpx4sAPOsIE-K0W-DWASK_5Qg0TyAcYab9FSgqnGuoJs4Uy86MT13Txrqi/s320/103_3391.JPG" height="320" width="240" /></a></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">............. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">After we got home, Isaiah's health has continued to get so much better!</span></span></div>
<div style="text-align: center;">
<br /></div>
<div style="text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He has laughed and smiled everyday..</span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We are not where we want to be, but PRAISE GOD we are not where we were! </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The crazy body temp stuff has finally stopped and we can hold him close again and cover him with blankets!</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">That is worth more than gold! </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Most of the seeping has stopped and his flares have been few and far between. The only places that are inflamed now are the places that topical steroid was actually applied.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He is getting better every single day!</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We are still sleeping in the recliner and wrapping his limbs in gauze but I know and believe that will be short-lived.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We went to the ped last Friday and received our first </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">GOOD REPORT!</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">His albumin had climbed, ON ITS OWN! since we were there last week and he has gained 3 lbs in 3 weeks!</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He is now almost 15 lbs! Our ped is so happy and so are we!</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He is eating more than he ever has, and we are starting him on an organic goat's milk formula this week.. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">continuing to press into healing with our precious son.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Life is getting back on track and I know soon, things will be back to normal in our lives..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We have missed life in general,</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">our family, our church family and our friends.. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We </span><span style="font-size: small;">give God glory for all of the blessings he has given us..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"> He has us in the palm of His hands and we are defeating the enemy by the Blood of the Lamb and the word of our testimony!</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Please contact me if you have any questions about Red Skin Syndrome or know someone who has severe, worsening eczema and have been using topical steroids with no improvement..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">God bless you and thanks for taking the time to read our story.. we hope it reaches those who need it, as we were sinking at one time in that sea of hopelessness and the unknown..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">There is HEALING and HOPE.. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">press on and NEVER GIVE UP!</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">xo</span></span><br />
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<span style="font-size: large;"><span style="font-family: "Courier New",Courier,monospace;">www.itsan.org <br /><br /><br /><a href="http://isaiahquinn.blogspot.com/2013/09/mr-itchy-and-mr-scratchy.html">Next blog entry: Mr Itchy and Mr Scratchy</a></span></span></div>
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Unknownnoreply@blogger.comtag:blogger.com,1999:blog-3261723211689270452.post-44229021730050938732013-09-01T13:50:00.000-07:002013-11-12T10:46:03.822-08:00Second hospital stay..<div class="separator" style="clear: both; text-align: center;">
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgQTkMVJ9UqbhFNAovxsx4I62Eorqe5Kmc2RFHSbxffMlxsXHhceiwvipZ8vqUptrzf9E-9WRr5pSdG0yvxqJcPfpIjdzWJN1c6Wwr5rPFe_iW7dl9LcadtEAvjFNfUAleBgwsUbkuhq-Bx/s1600/2013-06-03_15-38-49_491.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgQTkMVJ9UqbhFNAovxsx4I62Eorqe5Kmc2RFHSbxffMlxsXHhceiwvipZ8vqUptrzf9E-9WRr5pSdG0yvxqJcPfpIjdzWJN1c6Wwr5rPFe_iW7dl9LcadtEAvjFNfUAleBgwsUbkuhq-Bx/s320/2013-06-03_15-38-49_491.jpg" width="180" /></a></span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The first week of July, we were headed back to the hospital - this time through the ER again.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">It was a Wednesday night.. Isaiah continued to drop weight the entire month of June and his albumin was way below where it should have been. His electrolytes were off and our ped was very concerned about his blood protein and overall protein in his body.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We saw him at his office the day before and he said we needed to get protein in him however we could.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He had been eating a few first foods at that point and we were trying to build the protein through veggies.. just was not working. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">In discussion with our ped, we bought some grass-fed meat and made a light puree mixed with water.. his system was just too far downhill to even think about handling that..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"> the vomiting and diarrhea began.. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Within 2 hours it was uncontrollable and we were desperately packing bags, trying to head out the door as quickly as possible because we figured this ER trip would end up in another extended hospital stay...</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He was severely dehydrated and weak.. could not even open his eyes. He had not cried actual tears that whole day and had stopped urinating.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We sat in the ER for what seemed like forever. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We finally got into a room on the children's floor at 2am that night.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"> Then came the needle sticks, blood draws, lack of finding veins and IV back in his sweet little head. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhCgoEgr2V6OKQygeZnKOfn9x7RYXj8ymUSn0YCPW0ToG3ZAnovtzLcFLqBh3lVOsS-LoA-43D_oYFZHZdvayHdwqMLunwJXLsiG5Pz37VPIlNuKuFeEOzHXwqfwKKbbyiuTtGU1slq0rF2/s1600/2013-07-05_10-15-08_276.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="180" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhCgoEgr2V6OKQygeZnKOfn9x7RYXj8ymUSn0YCPW0ToG3ZAnovtzLcFLqBh3lVOsS-LoA-43D_oYFZHZdvayHdwqMLunwJXLsiG5Pz37VPIlNuKuFeEOzHXwqfwKKbbyiuTtGU1slq0rF2/s320/2013-07-05_10-15-08_276.jpg" width="320" /></a></span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Our ped made sure that no allergists, dermatologists or the GI doc came to see us.. Thank God for that.. I had to repent for my thoughts and feelings about them. Because of them, I stopped nursing my son, my milk dried up and now he was on a nasty, (expensive!) formula.. their cure-all of steriods and Neocate ended up not helping anything.. They probably think that Isaiah was healed because I had canceled all appointments with them after his first hospital stay, the awful rebound and then finding out about ITSAN.org.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The albumin bags started as well as the vitamin bags..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We had a greater peace this go round.. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Some of the great nurses we had the first stay, came to see us and helped comfort us since we were back in a room again on the floor.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I focused on the Lord and my husband and I were content knowing that our steps are ordered and we were right where we were supposed to be for the health of Isaiah.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">..
of course we wanted miraculous, instantaneous healing but we just
stayed focused on God, knowing that His plan for our lives is perfect..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We continued to speak life over our son and press deeper into healing..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Most of the awful symptoms were still there.. the ooze, redness, flaking, flares, crusting, and crazy body temp but we were over a month into full withdrawal and there was no going back.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Independence Day came the next day and I read from a friend on FB how she spent some time with the Lord and decided she needed a Dependance Day -- dependent fully on Him.. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">How I so much agreed.. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">a Dependance LIFE..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We never want to go through any storm </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">without the Lord in our boat..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">.......</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">My daughter left to make a trip home with my husband to swap out some clothes and pick up some dinner.. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">she told me how she saw fireworks outside the truck windows and she wished I could have seen them with her.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I promised her that next July 4th, we would not be in a hospital.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"> When we left the hospital, I held Isaiah all the way home.. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">his health was still poor but his blood protein had improved enough to where we, as well as our ped, were comfortable with us going home. We would be back at his office in 2 or 3 days anyway for our weekly checkups.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">This was him in my arms on the way home..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace; font-size: large;">Next Blog:</span></div>
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<span style="font-size: large;"><a href="http://isaiahquinn.blogspot.com/2013/09/when-we-got-home-from-hospital-stay.html"><br /></a></span></div>
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<span style="font-size: large;"><a href="http://isaiahquinn.blogspot.com/2013/09/when-we-got-home-from-hospital-stay.html"><span style="font-family: "Courier New",Courier,monospace;"> Off to Emory in Atlanta we go...</span></a></span></div>
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<span style="font-family: "Courier New",Courier,monospace; font-size: large;"> </span></div>
Unknownnoreply@blogger.comtag:blogger.com,1999:blog-3261723211689270452.post-5748587426030225202013-09-01T12:45:00.000-07:002015-09-16T08:32:00.293-07:00No more steroids!!<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We left the hospital with Isaiah on a Tuesday.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">That night was awful and itchy.. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">To try and help the itch, we used the Cortisone 10 once through the night..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">This was the only picture I took of him that week because the suffering that started made the last 2 months look like a piece of cake. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Within 48 hours of leaving the hospital, he began pouring fluid from every pore in his body. It looked like someone sprayed him with a water hose. The fluid was dripping off of his ears and running down into his eyes. It was sticky and everywhere.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He SCREAMED for the next two days - STRAIGHT - I can not even begin to put into words our feelings and our thought process during that time. My husband was working nights and it got beyond the point of me coping - I called him and he rushed home that Thursday night. We had no idea what to do or how to give Isaiah any relief.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I prayed to God to just take us all that night.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Life was not worth living for any of us, especially Isaiah. I just wanted him to be at peace and pain free. I could not take the torture anymore. I began to feel surreal, like my mind was beginning to crack under the pressure. I was wailing and crying out to the Lord, begging Him for an answer.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The next day was a Friday and we were in the pediatrician's office first thing that morning.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Before we left the house I remember holding Isaiah in front of the mirror and just weeping.. wailing.. I told God that I trusted Him for the answer but I needed it and I needed it now.. I told the Lord I could not take the unknown for another day or another sleepless, hellish night. I told Him I did not want to give up but I was on the tip of that bridge, fixing to plummet. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">My mind and body were at my breaking point, and I knew it. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I felt like I could not breathe and there was something huge sitting on my chest. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I began to hyperventilate.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I walked back in our living room and my husband was sitting on the couch in tears. He had heard every anguished word I had spoken in that mirror. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He had never seen or heard me at that point.. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He had never been at that point, himself..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I had not slept in days and I honestly don't even know how I was functioning because I did not even remember the last time I had eaten.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Again, there are just no words to describe those days and nights..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">When our Doctor walked in, he could not believe his eyes.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He was physically speechless for minutes..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">When he opened his mouth, he said "Never in my 30 years of practice have I ever seen anything like this.."</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">None of us knew where to even begin, much less what to do..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I just held Isaiah's wet blistered body and cried.. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I did not even have words to say anymore and could not say anything to those in the room.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">They did a CMP and his albumin and levels were so skewed.. We went home, thinking back, I don't know how.. I guess our Doctor was in shock honestly.. The hospital stay obviously did not help and I don't think he even knew the next step to take. He told us to do everything we could to get him eating to get his blood protein up and our doctor's visits were going to start every few days or until there was an emergency.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We went home to put him straight in the tub in the sink..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">That night we continued to cry out to God and my husband stumbled across this site after he typed in "steroid side effects" .. then, something clicked in my mind.. I picked up my phone and honestly I don't even remember exactly what words I typed in the search bar but I think it was "steroid cream side effects".. I came across this website/blog:</span></span></div>
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<a href="http://jseven.hubpages.com/hub/My-Topical-Steroid-Skin-Addiction-and-Withdrawal-Story"><span class="null"></span></a><a class="_553k" href="http://jseven.hubpages.com/hub/My-Topical-Steroid-Skin-Addiction-and-Withdrawal-Story" rel="nofollow" target="_blank">http://jseven.hubpages.com/hub/My-Topical-Steroid-Skin-Addiction-and-Withdrawal-Story</a><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">While I was digging, my husband stumbled across another site, of a man whose skin looked identical to Isaiah's. He was reading out loud about this man in "Topical Steroid Withdrawal" and how he had to move in with his fiance's parents for 8 months just so they could take care of him as he was in this withdrawal...</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">As I was looking through the pictures on the "Red Skin Syndrome" site, my mouth dropped open.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The topical steroids were causing all of this??</span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">This "full body severe eczema"??</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">There were picture after picture of children and adults that looked just like our son. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I had NEVER seen ANYONE who looked like him.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I sat in shock. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The steroids that the ER doctors and nurses, allergists, as well as the hospital allergist and doctors stated would be the only way our son could function and eventually clear..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">??</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">What!???</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I read all about the author of the blog, a sweet lady named Joey, who had used steroids for more than 20 years and she stumbled across another woman's story after she began the online search when the "eczema" that she had all of her life became totally out of control.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I found out about the non-profit organization ITSAN - the International Topical Steroid Addiction Network - and a Doctor from Beverly Hills - Doctor Rapaport, who said a lot of things that rang true with us - I watched a few videos of him speaking and was mind blown. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">To sum it up, he said </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">"Stop the steroids cold turkey.. brace yourself for hell on earth and with time, YOU WILL HEAL!" </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Everything made sense after reading and listening to those precious people. Those people who had suffered or were suffering, just as we were..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Those children soaking in baths, crying out in anguish, just like our Isaiah.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">And all the crazy symptoms matched.. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">the redness from head to toe, </span></span>the ooze, the odd smell, the itching, flaking and the flares..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Our son was in a continuous cycle of topical steroid withdrawal and we did not even know it. We would apply the cream and the vicious cycle continued, worsening each time.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Here are pictures of others going through TSW/RSS: </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><a href="http://itsan.org/rss-images/" target="_blank">http://itsan.org/rss-images/</a></span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">"Severe full bodied eczema"</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">??<br /><br />Is there even such a thing? <br />At this point, I do not believe so..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">A topical steroid induced eczema..?</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">yes, absolutely..</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We now feel that our son was misdiagnosed by the first allergist we saw.. At this point, I do not know what caused that original blister on his cheek, but I do know that the hell on earth experience in our home over the last 5 months is not typical "eczema".. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">As I stated in the last blog, I am allergic to penicillin. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">When I go to the doctor, I am asked, "Are you allergic to any medicines..?"</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">"Yes, penicillin.."</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">No crazy looks, no unbelief, no questions asked and </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">NO HIGHER DOSES PRESCRIBED!</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">??</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Why are steroids looked at differently? </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Just because the mass of population tolerates them well, with no crazy, tortuous side effects does not mean that there is not a group of people that can not.. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">our sweet, infant son for one.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We would soon find out that the MAJORITY of doctors, dermatologists and allergists think it is IMPOSSIBLE for steroids to have an adverse effect on people, </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">and they especially do not believe the symptoms our son had in and on his body were caused from the medications..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">? Why is that ?</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Topical Steroid Withdrawal is a REAL </span></span><span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><span class="spell"><a href="http://www.medicinenet.com/script/main/art.asp?articlekey=3886"><b><i>iatrogenic</i></b> disease</a></span> </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We would also find out in two more extended hospital stays and even conversations with many around us that people thought we were ludicrous. We also read on blog after blog where those suffering from TSW/Red Skin Syndrome were looked at the same way by most in the medical field and those doctors were trying to shove steroids straight down their throats - a very real issue, worldwide. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">There are even FDA studies and published articles that describe this, but still, most doctors are turning their heads and continuing to push the scripts.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><span class="spell"><a href="http://www.medicinenet.com/script/main/art.asp?articlekey=3886"></a></span> </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">********</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">At that point though, on that Friday night, God Almighty answered my gutted prayer from earlier that morning:</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">through an angel and fellow sufferer named Joey, a man named Jake and an organization of people who would soon seem closer than family in so many ways and would help carry us on into that healing. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">There was HOPE.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">And FINALLY, in an almost instant, the weight was coming off of my chest and I could begin to breathe again.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The suffering was not over.. no where near,</span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">but there was light at the end of the tunnel..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">and my LORD kept His word when He said,</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">"I will never leave you or forsake you.."</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">........ </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I immediately sent a text to our ped's nurse (an angel to us!) - as she and I text almost weekly - and sent her links to the information we had found.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">When we arrived at the doctor's office for our next visit a few days later, I took our Doctor info on ITSAN and some of the blogs we had found. He admitted he had never heard of anything like it but flipped his laptop open right in front of us and started digging. He was very open to the possibility, thank God, and like us, just wanted concrete answers. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We stayed afloat through prayer, tears and the testimonies of those on the ITSAN site/group and the blogs of the Red Skin Warriors until our next hospital stay the week of July 4, because Isaiah continued to loose weight and his health continued to plummet.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He had not grown any teeth at all and his hair continued to fall out.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He was not sitting up on his own and would barely eat. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">His skin was screaming for the steroids but we would not bow.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We pressed forward, praying and believing the best.</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Here are pictures from the next few weeks after we stopped all steroids on May 22, 2013..</span></span></div>
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<span style="font-size: large;"><a href="http://isaiahquinn.blogspot.com/2013/09/the-first-week-of-july-we-were-headed.html"><span style="font-family: "Courier New",Courier,monospace;">July - Second Hospital Stay</span></a></span></div>
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Unknownnoreply@blogger.comtag:blogger.com,1999:blog-3261723211689270452.post-90570813621686738692013-08-31T11:22:00.001-07:002015-07-14T05:45:22.244-07:00Baby Isaiah<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="font-size: xx-small;"><span style="font-family: "Courier New",Courier,monospace;">(photo source unknown)</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I am now at a place where I can finally speak.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Long, hard journey that is not quite over YET, but we are well on our way..</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Many of you have no idea that we have been living this nightmare out and up until this point, I have not been able to give a voice to our situation because the days and nights have consumed.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">[also, trying to complete this in a hurry, as I don't have much time on my hands these days.. please excuse the mistakes] </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">so, here goes... </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">2013.. New year, new baby..</span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><span style="font-weight: normal;">We came into the year overjoyed with the birth of our son in December, and were just settling into our new life as parents of two beautiful children.. A six year old little girl and a newborn baby boy. Our daughter transitioned so beautifully into </span></span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><span style="font-weight: normal;">Big Sister and was the biggest little helper from day one</span>.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We chose to name him Isaiah Quinn.. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Isaiah meaning "God is my salvation, God is my helper" <br />and Quinn meaning wisdom. <br />I actually searched out the word "wisdom" and found names that translated. Quinn was not a favorite of my husband's but the meaning won out over the actual name.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We have found that God is our Help, our only Help, </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">and the wisdom we have gained in this season is tremendous.</span></span><br />
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My husband and I have a wonderful marriage and for that I am so thankful. Little did we know that things were soon to take a drastic turn and days of grief would soon consume.. those days then turned into weeks, and the weeks into months and we would end up in the most trying, difficult season in our lives.. </span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">the fact that we have a rock solid, Christ-centered marriage has helped us more than I could ever put into words.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Christ is our saving Grace, our Strength and our Joy </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">in the midst of tribulation. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Everything was going great into February. The last pictures I took of him before things changed were actually near Valentine's day. I purchased a sweet little hat and he looked so handsome in it! His
skin tone was more like his daddy's and his eyes had not yet changed, a
beautiful slate grey. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He had the best little personality.. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Mama's little man. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Right after Valentine's Day, he developed this rash on his cheeks. We took him for his 3 month check up to our pediatrician, and he told us it was contact dermatitis and to change laundry powder and the like. We have always used organic and all natural products but we went unscented with everything. Changed shampoos, lotions, deodorants, you name it, we did it. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">His skin was great at home, but when we went out anywhere and someone held or touched him that had on perfume/cologne, regular makeup or clothes softener, etc., he would start screaming and immediately break out in a rash. We stopped letting people hold him or made sure there was a blanket in between..</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">..still his skin was super sensitive and it was hard to keep him away from everyone.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">In March, we were cleaning our church one Saturday and he was around a child who had impetigo, a secondary skin infection. By Monday, a blister developed on his right cheek that became crusty with infection and seemed to spread to his shoulder and elbow. He had a scratch on his cheek from his fingernail and that is where the blister developed.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">It continued to look bad, and we were worried, so we made an appointment with our ped, as well as with an allergist.</span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Two doctor's appointments later, we were told it looked like 'eczema' and the go to medicine for that is OTC cortisone. We had friends who also had children at the same time diagnosed with eczema and they successfully treated it with OTC Aveeno cortisone - which is considered a low dose steroid. </span></span><br />
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Because of the secondary infection, our son was also prescribed his first ever antibiotic, cephalexin. </span></span><br />
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Within 4 days we were in the emergency room because it looked like the skin was melting off of his cheeks. He screamed like I had never heard him scream before and was in so much pain. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The ER doctor and nurses had no answers and their diagnosis: </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">'severe eczema'. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We were prescribed an Rx steroid as well as an anti-fungal to cover all angles, I suppose. For some reason I never used the Rx steroid then and only used the anti-fungal once.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The redness started to creep all over his head.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">In my family, on my mother's side, we have extreme medicinal allergies. I am allergic to penicillin as is my great grandmother. When she took certain antibiotics, her cheeks would do the same as our son's.. turn bright red and burn. My mother also has severe allergies to morphine and other medications.I used a cyclene mix for a numbing cream once and instead of putting it on a large area, as I was supposed to, I thought I would try it out first in a dime size spot.. I ended up passing out. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">When I had our son in December via C-section, I begged the doctors and nurses to take me off the sedation meds because I felt like I was going crazy. My feet became so swollen and I was so loopy I could barely focus or talk. They would not take the IV out of my hand, but agreed to put a button on to push if the pain got to be too much. It was not used and I was so relieved when they finally agreed to remove the IV. I would rather deal with the pain than deal with the way the drugs were making me feel.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I can count how many times I have taken a tylenol in 5 years. I would just rather use natural means to help with any ailments I might have because of this and the side effects I get from medications. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">From March to May, we continued to chase this 'severe eczema rash' from the top to the bottom of our son's body, a handful of times with OTC cortisone creams. The redness crept from his head to his shoulders, from his shoulders, down both arms and down his tummy and back to his legs.. we did not understand why things were getting worse, extremely worse!</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He developed an odd metallic smell and his body temp could not/would not regulate.. he was beyond miserable. His skin was so hot to the touch and we would FREEZE trying to keep him comfortable. When we left the ER in March, he and I started sleeping in a recliner and the only thing I could cover him with was pillow cases.. even that made his skin blister and seep this clear fluid wherever his body came in contact with heat. I was sleeping in hooded jackets, sweatpants and boot slippers while he barely slept in a onesie. The recliner was new when we started sleeping in it and it now looks like it's 10 years old. There are holes and we have stretched the leather from living in it night and day.</span></span><br />
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Our life began to spiral downward with no hope in sight. The symptoms kept getting worse.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I only time I left the house with Isaiah was to go to the doctor. Everything came to a screeching halt, only to revolve around us trying to bring some sort of relief to our son. My husband and I were at a loss and NO ONE had any answers for us. We were doing everything we could just to try and stay afloat for our family. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgVXG1GNtWOZv-vL2sg5Xp8AIIip9lG0cnAEUNKiprZL-Gw_UDxEo2PNRyPSBQdcvkd5BqTLKmkpuwSrJHpSTtYn6uS4yHf8RnH1f7M_fDmGVA4O_TllkpromZFx-1oj1s4xacpXtpEohov/s1600/103_3000.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a>People in our lives meant well, but everyone had a cream, ointment, or lotion that they knew would help and we even had conversations with those who would call us with these crazy rare diseases and sicknesses to try to label what was going on with his body. I would hang up the phone even more discouraged.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Hardly anyone knew what we were going through and to most now, I am sure, reading this is a shock. Only a handful of our church family knew and we even received some messages from people telling us we needed to build our faith to receive the healing we so desired to see manifest. Really? .. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">God and our faith were the ONLY thing we were clinging to.. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">No one seemed to understand, and honestly, we didn't either. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We just kept calling those things that were not as though they were. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Most people had no idea of the depth of the pain and suffering.. in the beginning of this season, I actually preferred it that way because we had no answers as to why our son's skin and health was rapidly deteriorating and why he looked radically different than any and every other child I had ever laid eyes on.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I stopped calling and talking to people. Our phone would ring and I would not answer it. Honestly though, most times I couldn't even if I wanted to.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We do have a few people in our lives that in desperation, we would send a text to that just said, "Please pray.." and thank God those people would. I thank Him for those He placed in our lives that did help carry us through on their prayers even when they did not know what to say or physically have anything that would help.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Isaiah cried day and night and we held him 24-7. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The torment in his body continued.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Still no answers. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We prayed.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We cried.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We prayed and cried some more.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Extreme suffering is an understatement for what our son was going through. We did not understand because my husband nor myself have ever had any skin issues or eczema.. neither did our daughter. This fell out of the sky.. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">or climbed up from the pit of hell, we would agree. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">It seemed there was no end in sight and
Isaiah's health continued to plummet. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He was labeled "failure to thrive" as he stopped eating and was continually losing weight. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He was almost 6 months old and barely weighed 10.5 lbs.</span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Every day I placed him in a plastic bin, wrapped lightly in a pillow case and placed it on a postal scale </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">to see if he had dropped ounces. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Almost every single time he had. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I dreaded even laying eyes on the postal scale because if he dropped ounces, off to the doctor we were to go. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We tried to get him to eat, but he was so lethargic, he could barely lift his head.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The only time his skin semi-cleared was when the cortisone was applied but that was short lived, only lasting a day or two and it never would fully resolve the rash or the seeping skin. I would apply it for a day and then get so angry and toss the tube. This happened only a handful of times because on the inside I did not feel like I should have been using it in the first place.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He began to be lethargic and even more sickly.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I was breastfeeding him exclusively and went on a strict elimination diet trying to figure out what was going on with him because we had tried to remove everything else we could think of in the house. I lost almost 20 pounds in the process and my milk almost dried up. People told me to put him on goat's milk formula or a sensitive commercial infant formula. Our dog was locked in her crate in the laundry room or outside in a large backyard pen at all times. A coworker of my husband's bought us an expensive air purifier to try and help. No matter what we tried, things continued to get worse. We ended up not having company altogether and even withdrew from friends and family, feeling we really had no choice. A lot of people in our lives recommended we find a new pediatrician, get a second opinion, use more potent meds/steroids.. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">"Medicine should have cured him by now.." </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">What was wrong? </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Life was lonely and hopeless. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">My husband was trying to help me hold things together at home and working 40+ hours at his job. I prayed for his strength because without him, I would have sunk. We took turns holding Isaiah as our baby boy cried the hours away. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Most of the time, I wept along with him. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">
</span></span>
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We were visiting the doctor weekly and Isaiah was seeping so much fluid from his little body that he would soak anything he touched and his onesies would be stiff when we took them off of him. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He would fail the CMP heel prick tests miserably as everything was off in his body. His albumin was the worst of all because the seeping was so bad. Albumin is the blood protein and it was always dangerously low.</span></span><br />
<br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"> He had been on huge amounts of vitamins and supplements daily for months, probiotics and allergy medicines - nothing seemed to help. Every hour he had a medicine dispenser stuck in his mouth.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnIUd8Ecp5fkA7Klgm23mIgIH_3lAcB4jMgsY-84OpiMdFG4q_1-rg2GpMsM6zDkWFEQkYFtPIMGwsOoPweHXJBlQ58oHJaVTbdNKZ7c5f9cDtSPK4Vx1l5_Do3lHZ_ja5_7T_s1TH-Pek/s1600/103_3159.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnIUd8Ecp5fkA7Klgm23mIgIH_3lAcB4jMgsY-84OpiMdFG4q_1-rg2GpMsM6zDkWFEQkYFtPIMGwsOoPweHXJBlQ58oHJaVTbdNKZ7c5f9cDtSPK4Vx1l5_Do3lHZ_ja5_7T_s1TH-Pek/s320/103_3159.JPG" width="320" /></a> </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I wish I would have taken a picture of all the creams and lotions before I bagged them all up and tossed them in disgust. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The suffering continued.</span></span><br />
<br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">There
were so many days I could not even take pictures because he was in so
much pain. His skin was blistered and held heat like I could not believe. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">From March to July, he was in his baby bath in our kitchen sink AROUND THE CLOCK.. day and night. I could not use any soaps or body wash on him because his skin was super sensitive.. only soaked him in water.</span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He got to the point where he was taking 12 baths a day for at least 2 to 3 of those months.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">
The only time he slept was in his baby bath and I would let the water run over him for 30 or 45 minutes each time. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">When I shut the water off, he would scream and
I hated turning it off and taking him out.</span></span><br />
<br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I would have left him in there for months if I could because that was the only place he knew peace.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I would sit in our kitchen, all hours during the night, when our house was quiet, all but the water running in the sink and everyone else was sleeping..</span></span><br />
<br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I would pray and cry and hurt, seeing my sweet baby sleeping in the sink. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Lack of sleep can really mess with your mind and it was only the grace of God that kept me from losing mine. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The minutes drug by. The days seemed like years and the torment continued to get worse. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Just when I thought I was at my breaking point, the Lord would breathe on me.. speak something straight to my soul and I would press on another minute, another hour, another day, another sleepless night. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"> In my flesh, I honestly wanted to give up.. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">more times than I can even count.. wave the white flag of surrender.. but He would not let me.</span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">His strength is made perfect in my weakness.</span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I would just hold my sweet baby boy, sigh and cry.</span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We had healing scriptures all over our home.. we quoted them out loud.. we immersed ourselves in bible teaching, more so than we ever had. </span></span><br />
<br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We were rebuking the enemy, using our prayer language more than ever, seeking the Lord.. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">thanking Him, praising Him, even in the midst of the storm. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We started watching Joseph Prince and other bible teachers daily and those teachings transformed us and our way of thinking, even though my husband and I have been saved and in church ministry for more than 10 years. </span></span><br />
<br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">You never stop learning when it comes to the Lord and the Word.</span></span><br />
<br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"> I
began to truly seek Him in the suffering and in that, my thought
process was transforming, even though it seemed like nothing was
happening.</span></span><br />
<br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I should add that when I was pregnant with Isaiah, I started praying for a healing ministry for our children. That when they laid their hands on the sick, those people, through the power of the Holy Spirit in our children, would recover. I had never done that until Isaiah was in the womb. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I did that for months... </span></span><br />
<br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I knew in my spirit, that no matter what things looked like in the flesh that God had a plan and many, many times (daily) I had to cast down the imaginations from the enemy.. I could not go by what I saw, but I had to go by what I knew.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We kept pressing on.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgIeoFnp6tSonMOE3VkClN6tFIkFGTDL88PFtiSBKgAav479k6wYZTZU21vxuqmKv8P-kLZdSY-6ABsquzOxjNeQ45U-5iCRiYGz86X5I3FoAobKFbsjo8TWxNmTFRfqJG4BZb-iNXkH3q2/s1600/103_3363.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgIeoFnp6tSonMOE3VkClN6tFIkFGTDL88PFtiSBKgAav479k6wYZTZU21vxuqmKv8P-kLZdSY-6ABsquzOxjNeQ45U-5iCRiYGz86X5I3FoAobKFbsjo8TWxNmTFRfqJG4BZb-iNXkH3q2/s320/103_3363.JPG" width="320" /></a></span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I quoted Psalm 91 more times than I can even count. </span></span><br />
<br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Two of the many scriptures I quoted all the time are </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Jeremiah 33:6 Behold, I will bring health and cure, and I will cure them, and will reveal unto them the abundance of peace and truth.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">And 1 John 4:17 ..As Christ is, so are we in this world.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Is Christ seated next to God with 'full bodied severe eczema'? No, as He is so are we in this world. Does He have itch, wounds or the inability to grow or thrive? No! Christ is the example of perfect heath. As He is, so are we - our children - in this world.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">
I knew the Lord held the answer, even when no one else did, and I never once, even in my grief, blamed God. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I did ask Him why, and in tears many times told Him I did not understand. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I just continued to press into Him and say out loud, </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">"I know You are for us, not against us"... </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">"Your ways are not our ways and Your thoughts are not our thoughts.." ..</span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">"Lord, I am hurting but I trust You.."</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"> We had to shut the mouth of the enemy, because he has a voice as well and he will speak loudly, if we allow him to.</span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"> The goal of the enemy, when we go through any struggle, is to get us to take our eyes off of our Savior.</span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I was never suicidal although I admit, I have never in my life had depressed and anguished thoughts like I did in the beginning of this season. I felt so lost. I have experienced deaths in my life and pain before but seeing our child suffer to the degree he was was almost more than I could bear. I physically and mentally did not think I would make it through. It brought my husband to tears and he rarely ever cries. We were both so broken on the inside, just hanging on to what felt like loose strings..</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">
I would tell the Lord, </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">"I know You are here.. even though I don't sense You, hear You or feel You most moments through my day right now.. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">I know you are everywhere.. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">..if I make my bed in the depths.."</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">........ </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">My husband and I both felt so alone.</span></span><br />
<br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"> Isaiah
began to lose all of his hair and he stopped meeting his milestones. He
was held all the time because we could not put him in his cradle or on a
blanket on the floor because of the blistering. His body temp was still
all out of whack.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">In May we went to the doctor for one of our weekly visits and Isaiah's health had declined so much that they wanted to give him a bolus IV bag in the office. They stuck him multiple times but could not get a vein anywhere. I was screaming on the inside holding his precious little body in my arms. He was so dehydrated and his health was severely failing. Our ped wrote up papers to have us admitted immediately to one of the large local hospitals in our town. This would end up being the first of 3 extended hospital stays....</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We got into the truck and drove straight to the hospital. I did not even put him in his carseat, just held him all the way, crying and speaking life over him. He could barely lift his head.</span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">It was all I could do to keep from falling completely apart.</span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">When we got to the children's floor, again a vein could not be found and they had the nurses from picc come and place an IV in his head.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">My husband overheard a nurse in the hall call to another and say, "Oh my gosh, you have got to come see this kid.."</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Really...? </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Many admitted they had never seen skin as broken down or as red as his..</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhAD7ezzzJcNhJ17tcSSPpaSys9tNJg1SO4hSzFYmGvLFZ3bcslYGb6XGxoFeQC6DGnRCDEhsCD4nAXVMOq9VqPV882549DXQODPnHKWH96KTbUCAZ0rjQKjJfeYpcPgMS9D3iIYgYGY1P3/s1600/2013-05-15_18-38-12_829.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhAD7ezzzJcNhJ17tcSSPpaSys9tNJg1SO4hSzFYmGvLFZ3bcslYGb6XGxoFeQC6DGnRCDEhsCD4nAXVMOq9VqPV882549DXQODPnHKWH96KTbUCAZ0rjQKjJfeYpcPgMS9D3iIYgYGY1P3/s320/2013-05-15_18-38-12_829.jpg" width="180" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEioYQgK3LjgY5v7yZitw2HKnHwcYUQUf8B2YnQTDZS1QUuMxhcPLtZMpK2dRFuHJjzA_WWIpQ2_iRe4FPGsz2djcQoIjiK22JzPvwqCsJGioxsW2jE8YrpHfr6RY7GIt0gO5wMbpXs9r_rh/s1600/2013-05-17_19-23-29_977.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEioYQgK3LjgY5v7yZitw2HKnHwcYUQUf8B2YnQTDZS1QUuMxhcPLtZMpK2dRFuHJjzA_WWIpQ2_iRe4FPGsz2djcQoIjiK22JzPvwqCsJGioxsW2jE8YrpHfr6RY7GIt0gO5wMbpXs9r_rh/s320/2013-05-17_19-23-29_977.jpg" width="180" /></a></span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhXnMODvDjaRc72LSQXVM-CezKGIuSDti8HOtDXozzrs_6_qePYdDPKYMfdGN2AB0sy3NOY2RsARTPzLReqRIUoYznaCq5JdvBVfTP8rZ0y7KkPxLVpbGhiPBCP84tWnB5mA-PL-2xDkNkk/s1600/2013-05-17_20-50-13_241%25281%2529.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a>I felt horrible.. dying on the inside.. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">wishing I could just open my eyes from this nightmare..</span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Many doctors came in and out of our room. We saw a GI doctor who told me I was poisoning my son with my breastmilk and I needed to stop immediately. That devastated me even further. On the inside I did not believe it, but everyone, including those in my family agreed with him, telling me the same, because we had tried everything else. I know they only wanted to help Isaiah but I know now, I should have went with my gut.. they inserted a Gtube and started him on Neocate - an amino-acid formula, which the GI doc said would be the 'cure all'..</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">..more about that later..</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">An allergist then walked in and told us that our son needed his first rounds of Rx steroids, that the OTC we had been using from March to May was not enough. He needed to be "blasted" with high dose IV steroids as well as Rx topicals to "make his skin clear". The
allergist told us that Isaiah "might rebound" and when we asked what
that meant, he said after the steroids wore off it could go into the worst "flare" he has ever had. I told him I did not want to do that then because there is no way I wanted to watch him get worse than he already had been. </span></span><br />
<br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Was this man absolutely crazy? </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">How could things "maybe" actually get worse?</span></span><br />
<br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He said over and over that it "might" happen but told us because of the condition of his skin we really had no choice. He would get better after that flare if it happened. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"> We were at a loss. Not understanding what to do and feeling totally helpless seeing our son's body continue to get more red and more hot when we did not even think that was humanly possible. Our ped, who was against steroids throughout the entire ordeal, gave his permission to the allergist for them to be used because he was at a loss as well. </span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">The allergist ended up prescribing four rounds of IV steroids, DermaSmoothe oil, as well as 2 other Rx topicals (requesting his records now to see exactly what those were..) over a 4 day period. Isaiah screamed during the application of them and they did not seem to work at all, especially during the first 24 hours. He itched like crazy and at one point seemed to choke and almost stopped breathing. I panicked, pushing the nurse button and screaming and the nurses rushed in to give him oxygen.</span></span><br />
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><br /></span></span>
<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">He also received 4 bags of albumin and rounds of lasix to help him pass the fluid because he would not urinate and the fluid was going into third space. His body was so swollen that his skin started splitting, especially on his shins and the places where the topical steroids were applied. His body poured fluid and he screamed and screamed.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">
Every 4 hours they were coming in to stick him for blood work and they never could get veins. I could not bear to see the suffering continue.
He was a human pincushion. It got to the point where I would have to
leave the room or my husband would have to go alone to have it done
because I was so mentally drained, I could not take anymore of hearing
him scream or seeing him tortured.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgLcoLDbvSA3s17z4R1Zz71hGITAHkEdrC4yEP-oOaZlOvCVbyUxZp0sZfCyNsgUqrhmEtknwv84t5vAbzOTfWkEce67XbXXXon0AjuNiLMAMJj_QMRGz1ugQJTLWwtMMTmyZSLmq19s1t2/s1600/2013-05-19_14-56-47_480.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgLcoLDbvSA3s17z4R1Zz71hGITAHkEdrC4yEP-oOaZlOvCVbyUxZp0sZfCyNsgUqrhmEtknwv84t5vAbzOTfWkEce67XbXXXon0AjuNiLMAMJj_QMRGz1ugQJTLWwtMMTmyZSLmq19s1t2/s320/2013-05-19_14-56-47_480.jpg" width="180" /></a></span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">After the third round of IV steroids, his skin was less red but became pasty white and even more sickly looking. The crazy body temp stuff was still going on and he was still itching like crazy.. the day before we left, my husband left early from the hospital to the nearest CVS and purchased Cortisone 10, brought it back and we applied that to no avail. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjG3r44hWrbYw2mstY1uT6bCcSMbiXMig3H34_RPuy3omjjheXvwCGHKqZspWf9r0mHFzSfe4416NxPZlf7SirnMLNPOT7DPB5iNz1f53VqZTvKEIqj3CzAXYyZNbkDU2Tv7874bqKDCUc3/s1600/2013-05-20_10-15-14_554.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjG3r44hWrbYw2mstY1uT6bCcSMbiXMig3H34_RPuy3omjjheXvwCGHKqZspWf9r0mHFzSfe4416NxPZlf7SirnMLNPOT7DPB5iNz1f53VqZTvKEIqj3CzAXYyZNbkDU2Tv7874bqKDCUc3/s320/2013-05-20_10-15-14_554.jpg" width="180" /></a></span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">With all those steroids in his little body, this was the clearest his skin was during this hospital stay. </span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjPZZ5wM60hehcC-w8tJezolHyvAOWeV9w2NMKFTlU8FHKYS-YKLQDNUHiY0KUCDwUz7cT76zea2jjm_GQac25h3P74mNpfnP8MLZsp_slwFOz9mGFq2E3AR8NZJJ8hPVs2khOAxVQVcivK/s1600/2013-05-20_10-15-58_552.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjPZZ5wM60hehcC-w8tJezolHyvAOWeV9w2NMKFTlU8FHKYS-YKLQDNUHiY0KUCDwUz7cT76zea2jjm_GQac25h3P74mNpfnP8MLZsp_slwFOz9mGFq2E3AR8NZJJ8hPVs2khOAxVQVcivK/s320/2013-05-20_10-15-58_552.jpg" width="180" /></a></span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">We were there for 7 days. The steroids had caused him to semi clear and he had gained some weight from the G-tube being inserted.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">When we left he was smiling for the first time in months. We had not even heard his laugh since he was a tiny baby and we thought maybe we were on our way to healing.</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_vPdALGy29EEfEAJjBg2zpOIGLUqvs4xeAleB_IKTOogUAJH5Fg2DLPDsKJiVFRnhsfpvWhEHuGBxrdUINCKfS_8-v2ayu10_gxO317eBVNe2AmqLW-yqFOVQiqt9oaAL8ga82JIkCVQa/s1600/2013-05-21_10-47-13_520.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="180" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_vPdALGy29EEfEAJjBg2zpOIGLUqvs4xeAleB_IKTOogUAJH5Fg2DLPDsKJiVFRnhsfpvWhEHuGBxrdUINCKfS_8-v2ayu10_gxO317eBVNe2AmqLW-yqFOVQiqt9oaAL8ga82JIkCVQa/s320/2013-05-21_10-47-13_520.jpg" width="320" /></a></span></span></div>
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<span style="font-family: "Courier New",Courier,monospace;"><span style="font-size: small;">Little did we know that all hell was truly about to break loose..</span></span><br />
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<span style="font-family: "Courier New",Courier,monospace; font-size: large;">Next Blog Post: </span><br />
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<span style="font-family: "Courier New",Courier,monospace; font-size: large;"><a href="http://isaiahquinn.blogspot.com/2013/09/home-from-hospital-first-hospital-stay.html">Home from the First Hospital Stay...</a></span><br />
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